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新生儿重症监护病房中的儿科姑息治疗:融合的新时代。

Paediatric palliative care in the NICU: A new era of integration.

机构信息

Ethox Centre, Nuffield Department of Population Health, University of Oxford, UK; Oxford Uehiro Centre for Practical Ethics, Faculty of Philosophy, University of Oxford, UK; Louis Dundas Centre for Children's Palliative Care, Great Ormond Street Hospital, London, UK.

Division of Neonatal-Perinatal Medicine, Department of Pediatrics, Yale School of Medicine, New Haven, CT, USA.

出版信息

Semin Fetal Neonatal Med. 2023 Jun;28(3):101436. doi: 10.1016/j.siny.2023.101436. Epub 2023 Apr 21.

Abstract

We are entering a new era of integration between neonatal medicine and paediatric palliative care, with increasing recognition that the role and skills of palliative care extend beyond care of only the terminally ill infant. This paper addresses the principles of paediatric palliative care and how they apply in the NICU, considers who provides palliative care in this setting and outlines the key components of care. We consider how the international standards of palliative care pertain to neonatal medicine and how a fully integrated approach to care may be realised across these two disciplines. Palliative care is so much more than end-of-life care, offering a proactive and holistic approach which addresses the physical, emotional, spiritual and social needs of the infant and family. This is a truly interdisciplinary endeavour, relying on a harmonisation of the skills from both the neonatal and palliative care teams to deliver high-quality coordinated care.

摘要

我们正迈入新生儿医学与儿童舒缓疗护整合的新纪元,人们越来越认识到,舒缓疗护的角色和技能不仅限于临终患儿。本文探讨了儿童舒缓疗护的原则及其在新生儿重症监护病房(NICU)的应用,思考了在这一环境下由谁来提供舒缓疗护,并概述了照护的关键内容。我们还探讨了国际舒缓疗护标准如何适用于新生儿医学,以及如何在这两个学科中实现全面整合的照护方法。舒缓疗护远不止是临终关怀,它提供了一种积极主动的整体方法,满足了患儿及其家庭的身体、情感、精神和社会需求。这是一项真正的跨学科工作,依赖于新生儿和舒缓疗护团队技能的协调,以提供高质量的协调照护。

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