Umduduzi - Hospice Care for Children, Durban, South Africa; and, Department of Paediatrics, Faculty of Health Sciences, University of KwaZulu-Natal, Durban, South Africa; and, Department of Family Medicine, Faculty of Health Sciences, University of KwaZulu-Natal, Durban.
S Afr Fam Pract (2004). 2023 Apr 20;65(1):e1-e5. doi: 10.4102/safp.v65i1.5722.
Palliative care has been defined as 'the active holistic care of individuals across all ages with serious health-related suffering due to severe illness, and especially of those near the end of life'. Unfortunately, palliative care and especially paediatric palliative care remain a neglected area of medicine and are widely misunderstood, with few healthcare providers having any formal training in South Africa. To relieve health-related suffering, healthcare providers must understand that the field is not limited to end-of-life care for the terminally ill, and holistic care (physical, emotional, social and spiritual) should commence at the time of diagnosis of a serious illness. It is imperative that all healthcare providers develop the knowledge and skills to provide this essential care across all levels of care and disciplines. The article aims to raise awareness and show how to practically implement palliative care through case studies.
姑息治疗的定义是“积极的整体护理,适用于所有年龄段因严重疾病而遭受严重健康相关痛苦的个人,尤其是接近生命终点的人”。不幸的是,姑息治疗,尤其是儿科姑息治疗仍然是医学中被忽视的领域,并且被广泛误解,南非很少有医疗保健提供者接受过这方面的正规培训。为了减轻健康相关的痛苦,医疗保健提供者必须认识到,该领域不仅限于对绝症患者的临终关怀,而且应在诊断严重疾病时就开始进行全面的关怀(身体、情感、社会和精神)。至关重要的是,所有医疗保健提供者都应发展知识和技能,以便在所有护理级别和学科中提供这种基本护理。本文旨在提高认识,并通过案例研究展示如何实际实施姑息治疗。