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儿童囊性纤维化的系统评价:非医学治疗方案能否带来更好的心理健康结果?

A Systematic Review of Cystic Fibrosis in Children: Can Non-Medical Therapy Options Lead to a Better Mental Health Outcome?

作者信息

Gonzalez Natalie A, Dayo Sana M, Fatima Umaima, Sheikh Aaiyat, Puvvada Chaitanya S, Soomro Faiza H, Osman Hafsa A, Haridi Merna, Khan Safeera

机构信息

Pediatrics, California Institute of Behavioral Neurosciences & Psychology, Fairfield, USA.

Public Health Sciences, Liaquat University of Medical and Health Sciences, Jamshoro, PAK.

出版信息

Cureus. 2023 Apr 6;15(4):e37218. doi: 10.7759/cureus.37218. eCollection 2023 Apr.

Abstract

Cystic fibrosis (CF) is a chronic disorder that begins at an early age, so it is crucial to be aware of the physical and emotional burden placed on individuals suffering from it and their families. It significantly impacts an individual's life; therefore, it is essential to acknowledge the effects of the disease on physical and mental health. Our systematic review aims to highlight the areas of life affected by cystic fibrosis and evaluate various non-medical treatment options that may support the mental health of CF patients. We selected PubMed, Google Scholar, and MEDLINE (Medical Literature Analysis and Retrieval System Online) as our databases. We initially found 146,095 articles and narrowed the number of articles down using filters, exclusion and inclusion criteria, and various combinations of Medical Subheadings (MeSH) and key terms. We decided to use a final count of nine articles for our systematic review. The studies we included highlighted the negative impact of cystic fibrosis on mental health, like depression and anxiety, as well as on sleep, physical health, and overall quality of life. Several non-medical interventions, such as logotherapy, psychological interventions, complementary and alternative medicine, and many more, have been shown to enhance the mental health of many participants. Studies suggested that such therapy options may greatly benefit individuals with cystic fibrosis and their current treatment plan. This review indicates that non-medical therapy options can enhance the mental health of individuals suffering from cystic fibrosis and that it is crucial to bring more attention to preventing and treating mental health issues in cystic fibrosis patients. However, as current data is limited, more research with a larger number of participants over an extended period of time is necessary to better evaluate the efficacy of non-medical interventions on mental health.

摘要

囊性纤维化(CF)是一种始于幼年的慢性疾病,因此,了解患者及其家人所承受的身体和情感负担至关重要。它会对个人生活产生重大影响;因此,认识到该疾病对身心健康的影响至关重要。我们的系统评价旨在突出受囊性纤维化影响的生活领域,并评估各种可能支持CF患者心理健康的非医疗治疗选择。我们选择了PubMed、谷歌学术和MEDLINE(医学文献分析与在线检索系统)作为我们的数据库。我们最初找到了146,095篇文章,并使用筛选器、排除和纳入标准以及医学主题词(MeSH)和关键词的各种组合缩小了文章数量。我们决定在系统评价中最终使用9篇文章。我们纳入的研究强调了囊性纤维化对心理健康(如抑郁和焦虑)、睡眠、身体健康和总体生活质量的负面影响。一些非医疗干预措施,如意义疗法、心理干预、补充和替代医学等,已被证明可以改善许多参与者的心理健康。研究表明,这些治疗选择可能会使囊性纤维化患者及其当前的治疗计划受益匪浅。本评价表明,非医疗治疗选择可以改善囊性纤维化患者的心理健康,并且必须更加关注预防和治疗囊性纤维化患者的心理健康问题。然而,由于目前的数据有限,需要进行更多涉及大量参与者且时间更长的研究,以更好地评估非医疗干预对心理健康的疗效。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5ed9/10163933/46d0f8c61b90/cureus-0015-00000037218-i01.jpg

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