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检查唐氏综合征患者的技术使用频率和类型:来自父母和照顾者的观点。

Examining the prevalence and type of technology-use in people with Down syndrome: Perspectives from parents and caregivers.

机构信息

School of Psychology, University of Surrey, Guildford, UK; School of Psychology, University of Sussex, Falmer, UK.

School of Psychology, University of Surrey, Guildford, UK; Centre for Educational Neuroscience, Birkbeck University of London, London, UK.

出版信息

J Intellect Disabil. 2024 Sep;28(3):683-705. doi: 10.1177/17446295231176121. Epub 2023 May 18.

DOI:10.1177/17446295231176121
PMID:37201287
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11465601/
Abstract

Familiarity with technology has become a requirement for independent living, however there is limited information on technology access and use for people with Down syndrome (DS). The aim of this study is to describe technology, gaming, and social-media use in people with DS. Parents/caregivers ( = 220) of individuals with DS aged 5-35 years (49% female) completed an online questionnaire. They felt that technology and social media use, and to a lesser extent gaming, played an important role in their son/daughter's life. However, many had concerns about their son/daughter's safety online, and identified challenges they faced with using technology, such as using a mouse and speech recognition. We also found substantial parental interest in learning more about technology-use in DS, particularly the impact of using social media. This paper summarises important details about technology-use in people with DS, providing foundational information for the design of effective technology-based activities and support.

摘要

对技术的熟悉程度已成为独立生活的一项要求,但关于唐氏综合征(DS)患者获取和使用技术的信息有限。本研究旨在描述 DS 患者的技术、游戏和社交媒体使用情况。220 名年龄在 5-35 岁的 DS 患者的父母/照顾者(49%为女性)完成了一份在线问卷。他们认为技术和社交媒体的使用,以及在较小程度上的游戏,对他们的儿子/女儿的生活起着重要作用。然而,许多人对他们的儿子/女儿在网上的安全表示担忧,并指出了他们在使用技术方面面临的挑战,例如使用鼠标和语音识别。我们还发现父母对了解更多关于 DS 中技术使用的兴趣很大,特别是使用社交媒体的影响。本文总结了 DS 患者技术使用的重要细节,为设计有效的基于技术的活动和支持提供了基础信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/2780f7742ac6/10.1177_17446295231176121-fig7.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/5726f00e3fa0/10.1177_17446295231176121-fig1.jpg
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https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/6e41d2a44c94/10.1177_17446295231176121-fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/f34c8859a92a/10.1177_17446295231176121-fig5.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/2a72f40c6ee4/10.1177_17446295231176121-fig6.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/2780f7742ac6/10.1177_17446295231176121-fig7.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/5726f00e3fa0/10.1177_17446295231176121-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/3cd5c09d4e51/10.1177_17446295231176121-fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/ab19b47a55e7/10.1177_17446295231176121-fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/6e41d2a44c94/10.1177_17446295231176121-fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/f34c8859a92a/10.1177_17446295231176121-fig5.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/2a72f40c6ee4/10.1177_17446295231176121-fig6.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e18c/11465601/2780f7742ac6/10.1177_17446295231176121-fig7.jpg

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