University of California, San Diego.
University of KwaZulu-Natal.
Am J Bioeth. 2023 Jul;23(7):43-49. doi: 10.1080/15265161.2023.2207524. Epub 2023 May 19.
In a recent public engagement study on heritable human genome editing (HHGE) conducted among South Africans, participants approved of using HHGE for serious health conditions-viewing it as a means of bringing about valuable social goods-and proposed that the government should actively invest resources to ensure everyone has equal access to the technology for these purposes. This position was animated by the view that have a claim to these social goods, and this entitlement justified making HHGE available in the present. This claim can be ethically justified in the Ubuntu ethic (deriving from South Africa) as it (a) emphasizes the interests of the community, and (b) espouses a metaphysical conception of the community that transcends the present generation and includes past and future generations. On this basis, a compelling claim can be made on behalf of prospective persons in favor of equal access to HHGE.
在最近一项针对南非人的可遗传性人类基因组编辑（HHGE）的公众参与研究中，参与者赞成将 HHGE 用于严重的健康状况——将其视为带来有价值的社会利益的一种手段——并提议政府应积极投入资源，确保每个人都能平等地获得这项技术，以达到这些目的。这种立场的动机是认为人们对这些社会利益有要求，这种权利使现在就提供 HHGE 变得合理。这种要求可以在 Ubuntu 伦理（源自南非）中得到伦理上的证明，因为它（a）强调社区的利益，（b）拥护一种超越当前一代并包括过去和未来世代的社区的形而上学概念。在此基础上，可以代表未来的人提出有说服力的要求，以平等获得 HHGE。
