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本文引用的文献

1
Critiquing the Critique of Advocacy.对倡导之批判的批判
Am J Bioeth. 2023 Jul;23(7):97-99. doi: 10.1080/15265161.2023.2208073.
2
Ethical, Legal, and Social Implications of Genomics Research: Implications for Building a More Racially Diverse Bioethics Workforce.基因组学研究的伦理、法律和社会影响：对构建更具种族多样性的生物伦理劳动力队伍的影响。
Am J Bioeth. 2023 Jul;23(7):106-108. doi: 10.1080/15265161.2023.2207519.
3
Narrative Equity in Genomic Screening at the Population Level.
Am J Bioeth. 2023 Jul;23(7):121-123. doi: 10.1080/15265161.2023.2207548.
4
The Other Side of the Self-Advocacy Coin: How For-Profit Companies Can Divert the Path to Justice in Rare Disease.自我维权的另一面：营利性公司如何在罕见病领域偏离正义之路。
Am J Bioeth. 2023 Jul;23(7):88-91. doi: 10.1080/15265161.2023.2207521.
5
Bounded Justice, Inclusion, and the Hyper/Invisibility of Race in Precision Medicine.精准医学中的有界正义、包容以及种族的超隐形/隐形
Am J Bioeth. 2023 Jul;23(7):27-33. doi: 10.1080/15265161.2023.2207515. Epub 2023 May 23.
6
Promoting Equality in the Governance of Heritable Human Genome Editing through Ubuntu: Reflecting on a South African Public Engagement Study.通过乌班图促进可遗传人类基因组编辑治理中的平等：对南非公众参与研究的反思。
Am J Bioeth. 2023 Jul;23(7):43-49. doi: 10.1080/15265161.2023.2207524. Epub 2023 May 19.
7
Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care.罕见病、倡导和正义：研究和临床护理中的交叉差异。
Am J Bioeth. 2023 Jul;23(7):17-26. doi: 10.1080/15265161.2023.2207500. Epub 2023 May 19.
8
The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research.公众参与人类基因组编辑研究治理的前景与现实。
Am J Bioeth. 2023 Jul;23(7):9-16. doi: 10.1080/15265161.2023.2207502. Epub 2023 May 19.
9
Is It Just for a Screening Program to Give People All the Information They Want?是否只是为了筛查项目而向人们提供他们想要的所有信息？
Am J Bioeth. 2023 Jul;23(7):34-42. doi: 10.1080/15265161.2023.2207510. Epub 2023 May 12.
10
Community Engagement in Precision Medicine Research: Organizational Practices and Their Impacts for Equity.社区参与精准医学研究：组织实践及其对公平的影响。
AJOB Empir Bioeth. 2023;14(4):185-196. doi: 10.1080/23294515.2023.2201478. Epub 2023 May 1.

Innovating for a Just and Equitable Future in Genomic and Precision Medicine Research.

作者信息

Dolan Deanne Dunbar, Cho Mildred K, Lee Sandra Soo-Jin

机构信息

Stanford University School of Medicine.

Columbia University.

出版信息

Am J Bioeth. 2023 Jul;23(7):1-4. doi: 10.1080/15265161.2023.2215201.

DOI:10.1080/15265161.2023.2215201
PMID:37353052
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10339710/
Abstract
摘要