University College London, UK.
Macquarie University, Australia.
Autism. 2024 Mar;28(3):786-792. doi: 10.1177/13623613231174543. Epub 2023 May 22.
Doing research online, via Zoom, Teams, or live chat, is becoming more and more common. It can help researchers to reach more people, including from different parts of the world. It can also make the research more accessible for participants, especially those with different communication preferences. However, online research can have its downsides too. We have recently been involved in three studies in which we had in-depth discussions with autistic people and/or parents of autistic children about various topics. It turns out, though, that some of these participants were not genuine. Instead, we believe they were "scammer participants": people posing as autistic people or parents of autistic children, possibly to gain money from doing the research. This is a real problem because we need research data that we can trust. In this letter, we encourage autism researchers to be wary of scammer participants in their own research.
在线上通过 Zoom、Teams 或实时聊天进行研究越来越常见。这可以帮助研究人员接触到更多的人,包括来自世界各地的人。对于参与者来说,这也使研究更便于他们参与,特别是对于那些有不同沟通偏好的人。然而,线上研究也有其缺点。最近我们参与了三项研究,与自闭症患者和/或自闭症儿童的家长深入讨论了各种话题。但事实证明,其中一些参与者并非真实存在。相反,我们认为他们是“骗子参与者”:冒充自闭症患者或自闭症儿童的家长,可能是为了从研究中获利。这是一个真正的问题,因为我们需要我们可以信任的研究数据。在这封信中,我们鼓励自闭症研究人员在自己的研究中警惕骗子参与者。