Bennett Kimberly J, Leese Jenny, Davis Jennifer C, Eng Janice J, Liu-Ambrose Teresa
Department of Physical Therapy, Faculty of Medicine, University of British Columbia, Vancouver, Canada.
Djavad Mowafaghian Centre for Brain Health, Vancouver Coastal Health Research Institute, University of British Columbia, Vancouver, Canada.
Disabil Rehabil. 2024 May;46(9):1870-1877. doi: 10.1080/09638288.2023.2210309. Epub 2023 May 22.
Cognitive deficits are common among stroke survivors and impact their functional independence. Despite the prevalence of cognitive deficits after stroke, cognitive function is largely overlooked in post-stroke care. The aim of this qualitative study was to explore the experiences of individuals living with post-stroke cognitive changes to understand the impact of these changes on their daily lives.
Semi-structured interviews were conducted with a purposeful sample of thirteen community-dwelling adults 50 years and older with chronic stroke who self-identified cognitive changes post-stroke. Interviews were transcribed and an inductive thematic analysis was completed.
Four key themes were identified: 1) inability to maintain everyday activities; 2) experiencing emotional responses to living with post-stroke cognitive changes; 3) a shrinking social world and; 4) seeking care for cognitive health post-stroke.
Post-stroke cognitive changes were described by participants as a driving force behind negative shifts in their daily lives, emotional health, and social connections after stroke. Despite seeking care for their post-stroke cognitive changes, many participants were unable to find support in mainstream healthcare. There is a demonstrated need to further elucidate the gaps in care for post-stroke cognitive deficits and implement community interventions targeting cognitive health post-stroke.
认知缺陷在中风幸存者中很常见，并影响他们的功能独立性。尽管中风后认知缺陷普遍存在，但在中风后护理中认知功能在很大程度上被忽视。这项定性研究的目的是探索有中风后认知变化的个体的经历，以了解这些变化对他们日常生活的影响。
对13名年龄在50岁及以上、患有慢性中风且自我认定中风后有认知变化的社区居住成年人进行了有目的抽样的半结构化访谈。访谈内容被转录，并完成了归纳主题分析。
确定了四个关键主题：1）无法维持日常活动；2）对中风后认知变化的生活产生情绪反应；3）社交圈子缩小；4）中风后寻求认知健康护理。
参与者将中风后认知变化描述为中风后他们日常生活、情绪健康和社会关系出现负面转变的背后驱动力。尽管他们为中风后的认知变化寻求护理，但许多参与者在主流医疗保健中无法获得支持。显然需要进一步阐明中风后认知缺陷护理方面的差距，并实施针对中风后认知健康的社区干预措施。
