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探索社区居住的脑卒中幸存者卒中后疲劳的体验:一项前瞻性定性研究。

Exploring the experience of post-stroke fatigue in community dwelling stroke survivors: a prospective qualitative study.

机构信息

Hunter New England Area Health Service, Hunter Region Mail Centre, Newcaste, Australia.

出版信息

Disabil Rehabil. 2012;34(16):1376-84. doi: 10.3109/09638288.2011.645111. Epub 2012 Jan 19.

DOI:10.3109/09638288.2011.645111
PMID:22256799
Abstract

PURPOSE

To explore the experience of post-stroke fatigue in community-dwelling stroke survivors with and without post-stroke mood disturbance within one year of stroke.

METHODS

This was a prospective qualitative cohort study including semistructured interviews undertaken at baseline (stroke onset), 3, 6, 9 and 12 months in 23 stroke survivors; eight single interviews were held with "supplementary" participants. Qualitative data analysis involved an inductive thematic approach using a process of constant comparison.

RESULTS

Thirty-one participants (17 men, 14 women; age range 37-94 years) took part in 122 interviews. The majority of participants was independent and experienced few major depressive symptoms. Three trajectories emerged regarding the participants' experiences of fatigue including experience of fatigue, coping strategies and knowledge.

CONCLUSIONS

The results of this study suggest that in spite of reasonable objective physical recovery post-stroke, fatigue in community-dwelling stroke survivors may be disabling. The use of qualitative methodology was sensitive in identifying the factors that play a role in the experience of fatigue. The essential role of health professionals in this context is to provide support and education regarding fatigue and to promote participation after stroke in therapy programs. Routine practice for stroke services should include fatigue advice prior to discharge.

摘要

目的

探讨一年内有和无卒中后情绪障碍的社区居住卒中幸存者的卒中后疲劳体验。

方法

这是一项前瞻性定性队列研究,包括 23 名卒中幸存者在基线(卒中发作)、3、6、9 和 12 个月进行的半结构式访谈;对“补充”参与者进行了 8 次单独访谈。使用不断比较的归纳主题方法进行定性数据分析。

结果

31 名参与者(17 名男性,14 名女性;年龄范围 37-94 岁)参加了 122 次访谈。大多数参与者独立,很少出现严重的抑郁症状。关于参与者疲劳体验的三种轨迹出现了,包括疲劳体验、应对策略和知识。

结论

这项研究的结果表明,尽管卒中后客观身体恢复情况良好,但社区居住的卒中幸存者可能会出现疲劳,从而致残。定性方法的使用在确定疲劳体验中起作用的因素方面非常敏感。在这种情况下,卫生专业人员的基本作用是提供关于疲劳的支持和教育,并促进卒中后参与治疗计划。卒中服务的常规实践应包括出院前的疲劳咨询。

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