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“不需要[治疗]!没必要,这就是我们存在的意义!”:纤维肌痛症脸书同伴支持小组的内容是否体现了心理灵活性原则?

"Don't need [therapy]! Not necessary, that's what we're for!": Does content from fibromyalgia Facebook peer support groups emulate psychological flexibility principles?

作者信息

Crump Lyndsay, LaChapelle Diane

机构信息

Department of Psychology, University of New Brunswick, PO Box 4400, Fredericton, NB E3B 5ª3, Canada.

出版信息

PEC Innov. 2023 Mar 2;2:100144. doi: 10.1016/j.pecinn.2023.100144. eCollection 2023 Dec.

Abstract

OBJECTIVE

Many persons with fibromyalgia (FM) use online peer support groups (OPSGs) to address unmet emotional or psychological needs. Some OPSG members have suggested that participation in an OPSG is a viable substitute for professional psychological services, however, no published research exploring this claim was identified.

METHODS

Discussion content collected from three Facebook FM OPSGs was thematically analyzed to explore whether the content posted in FM OPSGs emulated content consistent with the psychological flexibility model underlying Acceptance and Commitment Therapy (ACT) - an evidence-based psychotherapy for chronic pain conditions.

RESULTS

The content posted in OPSGs did not emulate and often contradicted the core psychological flexibility processes or skills emphasized in ACT programs.

CONCLUSION

Participation in an FM OPSG should be approached cautiously. Content from the FM OPSGs should not be considered a substitute for professionally delivered ACT, although participation may provide emotional support to help individuals move towards readiness for active psychotherapy.

INNOVATION

This research represents a novel application of the psychological flexibility model underlying ACT to assess the potential therapeutic value of a peer support community. Additionally, it is the first to clarify that content in FM OPSGs is not aligned with psychological flexibility processes.

摘要

目的

许多纤维肌痛(FM)患者利用在线同伴支持小组(OPSG)来满足未得到满足的情感或心理需求。一些OPSG成员认为参与OPSG是专业心理服务的可行替代方案,然而,未发现有已发表的研究探讨这一说法。

方法

对从三个Facebook上的FM OPSG收集的讨论内容进行主题分析,以探究FM OPSG上发布的内容是否与基于接纳与承诺疗法(ACT)的心理灵活性模型一致,ACT是一种针对慢性疼痛状况的循证心理疗法。

结果

OPSG上发布的内容并未与ACT项目中强调的核心心理灵活性过程或技能相符,且常常相互矛盾。

结论

参与FM OPSG应谨慎对待。FM OPSG的内容不应被视为专业提供的ACT的替代品,尽管参与可能提供情感支持,以帮助个体为积极的心理治疗做好准备。

创新点

本研究代表了ACT所基于的心理灵活性模型在评估同伴支持社区潜在治疗价值方面的新应用。此外,它首次明确指出FM OPSG中的内容与心理灵活性过程不一致。

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本文引用的文献

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Fibromyalgia.纤维肌痛。
Ann Intern Med. 2020 Mar 3;172(5):ITC33-ITC48. doi: 10.7326/AITC202003030.
4
Psychological impact of fibromyalgia: current perspectives.纤维肌痛的心理影响:当前观点
Psychol Res Behav Manag. 2019 Feb 13;12:117-127. doi: 10.2147/PRBM.S178240. eCollection 2019.
9
EULAR revised recommendations for the management of fibromyalgia.EULAR 修订的纤维肌痛管理建议。
Ann Rheum Dis. 2017 Feb;76(2):318-328. doi: 10.1136/annrheumdis-2016-209724. Epub 2016 Jul 4.

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