Benedetti Maria Grazia, Tarricone Ilaria, Monti Manuela, Campanacci Laura, Regazzi Maria Giulia, De Matteis Tiziano, Platano Daniela, Manfrini Marco
Physical Medicine and Rehabilitation Unit, IRCCS Istituto Ortopedico Rizzoli, 40136 Bologna, Italy.
Department of Biomedical and Neuromotor Sciences, University of Bologna, 40126 Bologna, Italy.
Children (Basel). 2023 May 12;10(5):867. doi: 10.3390/children10050867.
Rotationplasty (RP) is a special surgical technique for bone tumors of the lower limb and is the chosen procedure for children under 6 with bone sarcoma in the distal femur. Leg reconstruction results in an unusual aspect of the limb potentially giving life-long emotional outcomes, especially considering the young age of most RP patients. Although the high level of the quality of life of these patients has been previously reported, aspects related to long-term psychological well-being, self-esteem and life satisfaction, particularly regarding the gender, procreation and parenting, have never been explored. The aim of this study was to assess the general degree of psychological well-being of RP patients, with specific reference to gender, procreation and parenting. Twenty long-term RP survivors of high-grade bone sarcoma participated in the study. They were administered the following validated questionnaires: HADS for psychological well-being (degree of anxiety and depression), Temperament and Character Inventory (TCI), RSES for self-esteem, SF-36 for quality of life, SWLS extended to life satisfaction, and ABIS for body image integration. Data on education, marriage, employment and parenthood were gathered. All the scores obtained were very close to normal references. The only gender difference was found for the TCI Cooperativeness scale, which was higher in women than in men. A satisfactory psychological well-being in terms of both self-esteem and integration of the prosthetic joint limb into one's body image, with relatively limited amount of anxiety/depression, good quality of life, and good temperament and character traits, was found. No major gender differences were reported.
旋转成形术(RP)是一种用于治疗下肢骨肿瘤的特殊外科技术,是6岁以下股骨远端骨肉瘤患儿的首选手术方法。腿部重建会使肢体呈现出不同寻常的外观,这可能会给患者带来终身的情感影响,尤其是考虑到大多数接受RP手术的患者年龄较小。尽管此前已有报道称这些患者的生活质量较高,但与长期心理健康、自尊和生活满意度相关的方面,尤其是在性别、生育和养育子女方面,从未被探讨过。本研究的目的是评估RP患者的总体心理健康程度,特别关注性别、生育和养育子女方面。20名高级别骨肉瘤的长期RP幸存者参与了该研究。他们接受了以下经过验证的问卷测试:用于评估心理健康(焦虑和抑郁程度)的医院焦虑抑郁量表(HADS)、气质和性格量表(TCI)、用于评估自尊的自尊量表(RSES)、用于评估生活质量的健康调查简表(SF-36)、扩展到生活满意度的生活满意度量表(SWLS)以及用于评估身体意象整合的身体意象量表(ABIS)。收集了有关教育、婚姻、就业和为人父母的数据。所有获得的分数都非常接近正常参考值。仅在TCI合作性量表上发现了性别差异,女性得分高于男性。研究发现,患者在自尊以及将假肢关节肢体融入身体意象方面的心理健康状况令人满意,焦虑/抑郁程度相对有限,生活质量良好,气质和性格特征也较好。未报告重大性别差异。