Chan Chung M, Lindsay Adam D, Spiguel Andre R V, Parker Gibbs C, Scarborough Mark T
Division of Musculoskeletal Oncology, Department of Hand and Reconstructive Microsurgery, National University Hospital, National University Health System, Republic of Singapore.
Department of Orthopaedic Surgery, University of Connecticut, Farmington, CT, USA.
J Patient Exp. 2022 Jan 4;9:23743735211069818. doi: 10.1177/23743735211069818. eCollection 2022.
Rotationplasty is an established technique that is indicated as part of the surgical reconstruction for certain patients with primary bone tumors around the knee who undergo tumor resection. There is considerable variation in the application of rotationplasty by surgeons as well as acceptance of the procedure by patients who may be candidates for this procedure. We qualitatively studied the decision-making process of families of patients who had undergone rotationplasty by interviewing 4 patients and their families using semi-structured interviews. Thematic analysis identified the following themes that were important in the decision-making process: (1) the desire for good information sources, (2) finding value in meeting with other patients who had been faced with a similar decision, (3) prioritizing function over cosmesis, (4) a desire to limit the need for revision surgeries, and (5) accepting that a return to normalcy is not an option with a surgery. Physicians and patients faced with a similar decision can benefit from a better understanding of the process, and by the normalization of anxieties and concerns that they may experience.
旋转成形术是一种既定的技术，适用于某些接受肿瘤切除的膝关节周围原发性骨肿瘤患者的手术重建。外科医生在旋转成形术的应用以及可能适合该手术的患者对该手术的接受程度方面存在很大差异。我们通过使用半结构化访谈对4名患者及其家属进行访谈，对接受旋转成形术患者的家属的决策过程进行了定性研究。主题分析确定了在决策过程中重要的以下主题：（1）对良好信息来源的渴望；（2）在与面临类似决策的其他患者会面中找到价值；（3）将功能置于美观之上；（4）希望限制翻修手术的必要性；（5）接受手术无法恢复正常状态这一事实。面临类似决策的医生和患者可以通过更好地理解该过程以及使他们可能经历的焦虑和担忧正常化而受益。
