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让南非的跨性别女性参与 HIV 研究。

Engaging transgender women in HIV research in South Africa.

机构信息

Social, Health, and Empowerment (S.H.E) Feminist Collective of Transgender Women of Africa, East London, South Africa.

Public Health, Societies and Belonging (PHSB) the Human Sciences Research Council (HSRC), Cape Town, South Africa.

出版信息

BMC Public Health. 2023 May 29;23(1):990. doi: 10.1186/s12889-023-15977-1.

DOI:10.1186/s12889-023-15977-1
PMID:37248495
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10226201/
Abstract

The Botshelo Ba Trans study was the first HIV bio-behavioral survey conducted with transgender women in South Africa. Engaging research with marginalized communities requires clear points of entry, reference points for understanding the internal culture, and establishing trust and understanding. The community-based participatory research approach guided the development and implementation of this study. We conducted a rapid qualitative and pre-surveillance formative assessment between August 2017 to January 2018 and a bio-behavioral survey between July 2018 and March 2019. At the start, a Steering Committee, comprising primarily of transgender women, was established and subsequently provided substantial input into the mixed methods study conducted in Buffalo City, Cape Town, and Johannesburg. Key to the study's success was building trust and establishing ownership of the survey by transgender women recognized as expert knowledge holders. Thus, a community-based participatory research-informed approach enhanced the validity of the data and ensured that we addressed relevant issues.

摘要

博塞洛巴转研究是南非首次针对跨性别女性进行的艾滋病毒生物行为调查。与边缘化社区开展研究需要明确切入点、理解内部文化的参考点,并建立信任和理解。社区参与式研究方法指导了这项研究的开展和实施。我们在 2017 年 8 月至 2018 年 1 月期间进行了快速定性和预监测形成性评估,并在 2018 年 7 月至 2019 年 3 月期间进行了生物行为调查。在开始时,成立了一个指导委员会,主要由跨性别女性组成,随后为在布法罗市、开普敦和约翰内斯堡进行的混合方法研究提供了大量投入。该研究成功的关键是建立信任,并由被公认为专家知识持有者的跨性别女性对调查建立所有权。因此,基于社区的参与式研究方法增强了数据的有效性,并确保我们解决了相关问题。

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本文引用的文献

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The HIV care continuum for sexually active transgender women in three metropolitan municipalities in South Africa: findings from a biobehavioural survey 2018-19.南非三个大都市地区性活跃跨性别女性的艾滋病毒护理连续体:2018-19 年生物行为调查结果
Lancet HIV. 2023 Jun;10(6):e375-e384. doi: 10.1016/S2352-3018(23)00059-0. Epub 2023 Apr 26.
2
Evidence for the Model of Gender Affirmation: The Role of Gender Affirmation and Healthcare Empowerment in Viral Suppression Among Transgender Women of Color Living with HIV.支持性别肯定模型的证据:性别肯定和医疗保健赋权在艾滋病毒感染者中的跨性别有色人种女性病毒抑制中的作用。
AIDS Behav. 2021 Jul;25(Suppl 1):64-71. doi: 10.1007/s10461-019-02544-2.
3
Tailoring a Skills-Based Serostatus Disclosure Intervention for Transgender Women in South Africa: Protocol for a Usability and Feasibility Study.
为南非跨性别女性量身定制基于技能的血清学状态披露干预措施:一项可用性和可行性研究方案
JMIR Res Protoc. 2025 Mar 26;14:e52121. doi: 10.2196/52121.
4
Transgender-Specific Differentiated HIV Service Delivery Models in the South African Public Primary Health Care System (Jabula Uzibone): Protocol for an Implementation Study.南非公立初级卫生保健系统中的跨性别者特定的差异化艾滋病毒服务提供模式(Jabula Uzibone):实施研究方案。
JMIR Res Protoc. 2024 Sep 13;13:e64373. doi: 10.2196/64373.
Applying Community-Based Participatory Research Partnership Principles to Public Health Practice-Based Research Networks.
将基于社区的参与性研究伙伴关系原则应用于基于公共卫生实践的研究网络。
Sage Open. 2016 Oct-Dec;6(4). doi: 10.1177/2158244016679211. Epub 2016 Nov 1.
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Establishing trust in HIV/HCV research among people who inject drugs (PWID): Insights from empirical research.在注射毒品者(PWID)中建立对 HIV/HCV 研究的信任:来自实证研究的见解。
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Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2017 Sep;60(9):999-1008. doi: 10.1007/s00103-017-2599-5.
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