Department of Social Work, Stockholm University, Stockholm, Sweden.
J Appl Res Intellect Disabil. 2023 Sep;36(5):929-939. doi: 10.1111/jar.13126. Epub 2023 Jun 2.
The autistic population is growing and ageing and this also applies to the parents. Despite this, research about parental experiences is still relatively scarce. Even though studies show, compared with adults with other disabilities, parents of autistic adolescents and adults report a decrease in well-being and that caregiving is often a lifelong commitment.
This scoping review maps, synthesises and identifies gaps in previous research as regards the experiences of parental caregivers of adult autistic children. The review was based on Arksey and Malley's framework and six databases were searched.
The results show how the research has focused on the well-being and consequences of daily caregiving for an American middle-class mother who co-resides with an adult son.
To enhance knowledge about formal services and service needs, more research is necessary on different welfare regimes and social contexts.
自闭症人群正在不断增长和老龄化，这同样适用于自闭症患者的父母。尽管如此，关于父母体验的研究仍然相对较少。尽管研究表明，与其他残疾成年人相比，自闭症青少年和成年患者的父母幸福感下降，而且照顾他们往往是终身承诺。
本范围综述描绘、综合并确定了之前关于成年自闭症儿童父母照顾者体验的研究中的空白。该综述基于 Arksey 和 Malley 的框架，搜索了六个数据库。
结果表明，研究如何集中于一位与成年儿子共同居住的美国中产阶级母亲的幸福感和日常照顾的后果。
为了增强对正规服务和服务需求的了解，有必要在不同的福利制度和社会背景下进行更多的研究。
