Department of Special Education, University of Illinois at Urbana-Champaign, Champaign, Illinois.
Department of Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee.
J Appl Res Intellect Disabil. 2020 Nov;33(6):1259-1267. doi: 10.1111/jar.12745. Epub 2020 Apr 20.
As adults with intellectual and developmental disabilities (IDD) have longer lives, parents may remain caregivers into old age. In addition, it is unknown who will fulfil caregiving roles after parents are no longer able to be caregivers. In the current study, we explored the nature (e.g. number of hours of caregiving) and correlates of parental caregiving for their adult offspring with intellectual and developmental disabilities and their future caregiving plans.
In the United States, data were collected from 334 parents of adults with intellectual and developmental disabilities via a national survey.
Altogether, 55% of the sample spent more than 15 hr conducting caregiving per week. Individual characteristics (e.g. maladaptive behaviour and functional abilities) and parent characteristics (e.g. physical proximity of the adult with intellectual and developmental disabilities and caregiving ability) positively correlated with caregiving hours. Notably, 38.58% of participants were unsure who would fulfil caregiving roles.
Implications for research about caregiving and practice are discussed.
随着智障和发育障碍成年人（IDD）的寿命延长，父母可能会在老年时继续担任照顾者。此外，尚不清楚父母不再能够担任照顾者后，谁将承担照顾者的角色。在本研究中，我们探讨了父母对智障和发育障碍成年子女的照顾性质（例如照顾时间）和相关因素，以及他们未来的照顾计划。
在美国，通过一项全国性调查，从 334 名智障和发育障碍成年子女的父母那里收集了数据。
总体而言，55%的样本每周花费超过 15 小时进行照顾。个体特征（例如适应不良行为和功能能力）和父母特征（例如智障和发育障碍成年子女的身体接近程度和照顾能力）与照顾时间呈正相关。值得注意的是，38.58%的参与者不确定谁将承担照顾者的角色。
讨论了对照顾和实践研究的影响。
