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多发性硬化症女性的母亲经历:主题元分析。

Motherhood Experiences of Women With Multiple Sclerosis: A Thematic Meta-Synthesis.

机构信息

Kumluca Faculty of Health Sciences, Akdeniz University, Antalya, Turkey.

School of Nursing, Istanbul University, Turkey.

出版信息

Clin Nurs Res. 2023 Jul;32(6):954-970. doi: 10.1177/10547738231177480. Epub 2023 Jun 2.

Abstract

The nature and unpredictable prognosis of multiple sclerosis (MS) make pregnancy and motherhood challenging experiences for women with the disease. Using the thematic synthesis method, we aimed to systematically interpret and synthesize data from qualitative research examining the motherhood experiences of women with MS. The analyses revealed three analytical themes: "Deciding to become a mother," "The journey during pregnancy, childbirth, and the postpartum period," and "Surviving as a mother with multiple sclerosis." For women with MS, being a mother, pregnancy, and the postpartum period were complex and challenging issues. During this period, most women felt lonely, thought that they were contradictory and inadequately informed by healthcare professionals and that they could not get enough social support. Despite all the difficulties, being a mother was a source of motivation for them. This meta-synthesis study provides healthcare professionals with an in-depth understanding of the experiences of women with MS with pregnancy, childbirth, postpartum period, and motherhood from their perspectives.

摘要

多发性硬化症(MS)的性质和不可预测的预后使得该病女性在怀孕和成为母亲方面面临挑战。本研究采用主题综合方法,旨在系统地解释和综合分析检查 MS 女性母亲经历的定性研究数据。分析揭示了三个分析主题:“决定成为母亲”、“怀孕期间、分娩和产后期间的旅程”和“作为多发性硬化症母亲生存”。对于患有多发性硬化症的女性来说,成为母亲、怀孕和产后期间是复杂且具有挑战性的问题。在此期间,大多数女性感到孤独,认为自己与医疗保健专业人员相矛盾,并且信息不足,无法获得足够的社会支持。尽管存在所有困难,但成为母亲是她们的动力源泉。这项荟萃综合研究为医疗保健专业人员提供了深入了解患有多发性硬化症的女性在怀孕、分娩、产后和母亲身份方面的体验,从她们的角度出发。

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