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不同类型的社会支持对痴呆症患者照顾者的影响。

The Influence of Different Types of Social Support in Caregivers of People with Dementia.

作者信息

Antelo Ameijeiras Paula, Espinosa Pablo

机构信息

Department of Psychology. Universidade da Coruña, Spain. Universidade da Coruña Department of Psychology Universidade da Coruña Spain.

出版信息

Int J Psychol Res (Medellin). 2023 Mar 5;15(2):85-93. doi: 10.21500/20112084.5639. eCollection 2022 Jul-Dec.

DOI:10.21500/20112084.5639
PMID:37274516
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10233963/
Abstract

Being a caregiver for a person with dementia has negative health consequences, like depression, stress, anxiety, and burden. Consequently, it is important that caregivers receive social support and social resources during the trajectory of the disease. This study analyzes how different types of social resources impact caregivers' well-being. A cross-sectional sample of 260 caregivers was divided into groups, depending on the social resources they had access to. Namely, social media (N = 157), day-care centers (N = 40) or residential centers (N = 63). Social support, isolation, burden, coping strategies, and satisfaction measures were administered to participants, and groups were compared using ANOVA and SEM models. Help-seeking and social support received through social resources predicted satisfaction and caregivers' burden. Formal resources positively influence care providers and their absence diminishes the impact of social support on perceived burden. This research reflects the importance of formal resources in the lives of caregivers and the benefits they generate throughout the course of the pathology. Supporting caregivers and bringing the social resources closer to them indirectly improves the informal response offered to people with dementia.

摘要

作为痴呆症患者的照料者会对健康产生负面影响,如抑郁、压力、焦虑和负担。因此,在疾病发展过程中,照料者获得社会支持和社会资源非常重要。本研究分析了不同类型的社会资源如何影响照料者的幸福感。根据照料者所能获得的社会资源,将260名照料者的横断面样本分为几组。具体来说,社交媒体组(N = 157)、日托中心组(N = 40)或居住中心组(N = 63)。对参与者进行了社会支持、孤独感、负担、应对策略和满意度测量,并使用方差分析和结构方程模型对各组进行比较。通过社会资源获得的求助行为和社会支持预测了满意度和照料者的负担。正式资源对照料者有积极影响,缺乏正式资源会削弱社会支持对感知负担的影响。本研究反映了正式资源在照料者生活中的重要性以及它们在整个病程中所产生的益处。支持照料者并使社会资源更接近他们,间接改善了对痴呆症患者的非正式应对。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/98ae/10233963/36afe5ffe1ec/2011-2084-ijpr-15-02-85-gf3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/98ae/10233963/8e6fc2581364/2011-2084-ijpr-15-02-85-gf1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/98ae/10233963/b52915959c8a/2011-2084-ijpr-15-02-85-gf2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/98ae/10233963/36afe5ffe1ec/2011-2084-ijpr-15-02-85-gf3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/98ae/10233963/8e6fc2581364/2011-2084-ijpr-15-02-85-gf1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/98ae/10233963/b52915959c8a/2011-2084-ijpr-15-02-85-gf2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/98ae/10233963/36afe5ffe1ec/2011-2084-ijpr-15-02-85-gf3.jpg

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本文引用的文献

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Int J Environ Res Public Health. 2021 Apr 28;18(9):4700. doi: 10.3390/ijerph18094700.
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Psychological distress among carers and the moderating effects of social support.照顾者的心理困扰及社会支持的调节作用。
BMC Psychiatry. 2020 Apr 6;20(1):154. doi: 10.1186/s12888-020-02571-7.
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Effect of instrumental support on distress among family caregivers: Findings from a nationally representative study.
工具性支持对家庭照顾者困扰的影响:一项全国代表性研究的结果
Palliat Support Care. 2020 Oct;18(5):519-527. doi: 10.1017/S1478951520000036.
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Providing care for a person with late-stage dementia at home: What are carers' experiences?在家照顾晚期痴呆症患者:照顾者有哪些经历?
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Resilience and burden in caregivers of older adults: moderating and mediating effects of perceived social support.老年人照顾者的韧性和负担:感知社会支持的调节和中介作用。
BMC Psychiatry. 2018 Jan 31;18(1):27. doi: 10.1186/s12888-018-1616-z.
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Testing the stress-buffering hypothesis of social support in couples coping with early-stage dementia.检验社会支持在应对早期痴呆症的夫妻中的压力缓冲假说。
PLoS One. 2018 Jan 4;13(1):e0189849. doi: 10.1371/journal.pone.0189849. eCollection 2018.
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