Department of Research & Development, Ciro, Horn, The Netherlands
Department of Health Services Research and Department of Family Medicine, Care and Public Health Research Institute, Faculty of Health Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands.
Eur Respir J. 2023 Aug 17;62(2). doi: 10.1183/13993003.02014-2022. Print 2023 Aug.
There is increased awareness of palliative care needs in people with COPD or interstitial lung disease (ILD). This European Respiratory Society (ERS) task force aimed to provide recommendations for initiation and integration of palliative care into the respiratory care of adult people with COPD or ILD. The ERS task force consisted of 20 members, including representatives of people with COPD or ILD and informal caregivers. Eight questions were formulated, four in the Population, Intervention, Comparison, Outcome format. These were addressed with full systematic reviews and application of Grading of Recommendations Assessment, Development and Evaluation for assessing the evidence. Four additional questions were addressed narratively. An "evidence-to-decision" framework was used to formulate recommendations. The following definition of palliative care for people with COPD or ILD was agreed. A holistic and multidisciplinary person-centred approach aiming to control symptoms and improve quality of life of people with serious health-related suffering because of COPD or ILD, and to support their informal caregivers. Recommendations were made regarding people with COPD or ILD and their informal caregivers: to consider palliative care when physical, psychological, social or existential needs are identified through holistic needs assessment; to offer palliative care interventions, including support for informal caregivers, in accordance with such needs; to offer advance care planning in accordance with preferences; and to integrate palliative care into routine COPD and ILD care. Recommendations should be reconsidered as new evidence becomes available.
人们越来越意识到慢性阻塞性肺疾病(COPD)或间质性肺疾病(ILD)患者的姑息治疗需求。本欧洲呼吸学会(ERS)工作组旨在为 COPD 或 ILD 成人患者的呼吸护理中姑息治疗的启动和整合提供建议。ERS 工作组由 20 名成员组成,包括 COPD 或 ILD 患者和非正式护理者的代表。制定了 8 个问题,其中 4 个采用人群、干预、比较、结局(Population, Intervention, Comparison, Outcome,PICO)格式。这些问题通过全面的系统综述和应用推荐评估、制定和评估(Grading of Recommendations Assessment, Development and Evaluation,GRADE)来解决,以评估证据。另外 4 个问题则进行了叙述性讨论。使用“证据决策”框架来制定建议。为 COPD 或 ILD 患者达成了姑息治疗的以下定义。一种整体的、多学科的、以患者为中心的方法,旨在控制因 COPD 或 ILD 而导致严重健康相关痛苦的患者的症状,提高其生活质量,并为其非正式护理者提供支持。针对 COPD 或 ILD 患者及其非正式护理者提出了以下建议:通过全面的需求评估,当发现身体、心理、社会或存在方面的需求时,考虑姑息治疗;根据这些需求提供姑息治疗干预措施,包括对非正式护理者的支持;根据个人意愿提供预先护理计划;并将姑息治疗纳入常规 COPD 和 ILD 护理中。应随着新证据的出现重新考虑建议。