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Exercise and Rehabilitation in People With Ehlers-Danlos Syndrome: A Systematic Review.埃勒斯-当洛综合征患者的运动与康复:一项系统综述。
Arch Rehabil Res Clin Transl. 2022 Mar 4;4(2):100189. doi: 10.1016/j.arrct.2022.100189. eCollection 2022 Jun.
3
Hypermobile Ehlers-Danlos syndrome and disorders of the gastrointestinal tract: What the gastroenterologist needs to know.易位型埃勒斯-当洛斯综合征和胃肠道疾病:胃肠病学家需要了解的知识。
J Gastroenterol Hepatol. 2022 Sep;37(9):1693-1709. doi: 10.1111/jgh.15927. Epub 2022 Jul 20.
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Osteopathic Manipulative Medicine: A Brief Review of the Hands-On Treatment Approaches and Their Therapeutic Uses.整骨疗法:手法治疗方法及其治疗用途简述。
Medicines (Basel). 2022 Apr 27;9(5):33. doi: 10.3390/medicines9050033.
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Is the Pain Just Physical? The Role of Psychological Distress, Quality of Life, and Autistic Traits in Ehlers-Danlos Syndrome, an Internet-Based Survey in Italy.疼痛仅仅是身体上的吗?心理困扰、生活质量和自闭症特质在埃勒斯-丹洛斯综合征中的作用,一项意大利的基于互联网的调查
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9
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整骨手法治疗对一名埃勒斯-当洛综合征患者的益处。

The Benefits of Osteopathic Manipulative Treatment on a Patient With Ehlers-Danlos Syndrome.

作者信息

Khokhar Daniel, Powers Bethany, Yamani Musaab, Edwards Michael A

机构信息

Osteopathic Manipulative Medicine, Edward Via College of Osteopathic Medicine, Spartanburg, USA.

Osteopathic Manipulative Medicine, Alabama College of Osteopathic Medicine, Dothan, USA.

出版信息

Cureus. 2023 May 8;15(5):e38698. doi: 10.7759/cureus.38698. eCollection 2023 May.

DOI:10.7759/cureus.38698
PMID:37292533
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10246933/
Abstract

Ehlers-Danlos syndrome (EDS) is a disorder affecting connective tissue throughout the body. Inherited through several different genetic mutations, the EDS symptoms of hyperextensibility, hypermobility, and fragility cause significant somatic and visceral issues in those affected. Chronic somatic dysfunction, pain, and systemic involvement create lifelong comorbidities and discomfort for these patients. One in every 5,000 individuals is burdened with EDS worldwide; in the US, the range has been reported to be 1/2,500-1/5,000 people. Very few patients with EDS in the literature have been documented and treated with osteopathic manipulative treatment (OMT). The objective of this case report is to describe the response of an EDS patient to outpatient OMT over a series of three office visits. The patient has verbally consented to OMT at each encounter. A combination of soft tissue manipulation, muscle energy, Still's technique, counterstrain, and high-velocity low-amplitude (HVLA) was performed in the head and neck, thoracic, lumbar, ribs, and lower extremity regions. During the three clinic visits of this patient, OMT was performed in the same regions by the student physician under the supervision of the attending physician. At each visit, the patient was asked to report their pain levels pre- and post-treatment and assess symptom improvement using a one to 10 pain scale, as well as any subjective symptoms they are experiencing. Following each treatment, as well as at each follow-up encounter, the patient reported marked pain and symptom improvement. The objective of this case report is to describe the benefits that one patient experienced from three clinic visits. These results showed that subjective improvement in respiratory, gastrointestinal, and musculoskeletal symptoms secondary to the longstanding history of EDS may be possible through the use of OMT.

摘要

埃勒斯-当洛综合征(EDS)是一种影响全身结缔组织的疾病。它通过几种不同的基因突变遗传,EDS的症状包括皮肤过度伸展、关节活动过度和组织脆弱,会给患者带来严重的躯体和内脏问题。慢性躯体功能障碍、疼痛和全身受累给这些患者带来了终身的合并症和不适。全球每5000人中就有1人患有EDS;在美国,据报道发病率在1/2500至1/5000之间。文献中记录并接受整骨手法治疗(OMT)的EDS患者非常少。本病例报告的目的是描述一名EDS患者在三次门诊就诊过程中接受门诊OMT的反应。患者在每次就诊时均口头同意接受OMT。对头颈部、胸部、腰部、肋骨和下肢区域进行了软组织手法、肌肉能量技术、斯蒂尔技术、拮抗肌松弛法和高速度低幅度(HVLA)手法的联合治疗。在该患者的三次门诊就诊期间,实习医生在主治医生的监督下在相同区域进行OMT。每次就诊时,要求患者报告治疗前后的疼痛程度,并使用1至10的疼痛量表评估症状改善情况,以及他们正在经历的任何主观症状。每次治疗后以及每次随访时,患者均报告疼痛和症状有明显改善。本病例报告的目的是描述一名患者从三次门诊就诊中获得的益处。这些结果表明,通过使用OMT,长期患有EDS的患者在呼吸、胃肠道和肌肉骨骼症状方面的主观改善是可能的。