Savaglio Melissa, Yap Marie B H, Smith Toni, Vincent Ash, Skouteris Helen
Health and Social Care Unit, School of Public Health and Preventive Medicine, Monash University, 553 St Kilda Road, Melbourne, VIC, 3004, Australia.
Turner Institute for Brain and Mental Health, School of Psychological Sciences, Monash University, Melbourne, VIC, Australia.
Child Adolesc Psychiatry Ment Health. 2023 Jun 9;17(1):67. doi: 10.1186/s13034-023-00621-y.
There has been limited focus on understanding the barriers and facilitators to meeting the broader psychosocial needs of young people with mental illness from the perspectives of young people. This is required to advance the local evidence base and inform service design and development. The aim of this qualitative study was to explore young people's (10-25 years) and carers' experiences of mental health services, focusing on barriers and facilitators to services supporting young people's psychosocial functioning.
This study was conducted throughout 2022 in Tasmania, Australia. Young people with lived experience of mental illness were involved in all stages of this research. Semi-structured interviews were conducted with 32 young people aged 10-25 years with experience of mental illness, and 29 carers (n = 12 parent-child dyads). Qualitative analysis was guided by the Social-Ecological Framework to identify barriers and facilitators at the individual (young person/carer level), interpersonal, and service/systemic level.
Young people and carers identified eight barriers and six facilitators across the various levels of the Social-Ecological Framework. Barriers included, at the individual level: (1) the complexity of young people's psychosocial needs and (2) lack of awareness/knowledge of services available; at the interpersonal level: (3) negative experiences with adults and (4) fragmented communication between services and family; and at the systemic level: (5) lack of services; (6) long waiting periods; (7) limited service accessibility; and (8) the missing middle. Facilitators included, at the individual level: (1) education for carers; at the interpersonal level: (2) positive therapeutic relationships and (3) carer advocacy/support; and at the systemic level: (4) flexible or responsive services, (5) services that address the psychosocial factors; and (6) safe service environments.
This study identified key barriers and facilitators to accessing and utilising mental health services that may inform service design, development, policy and practice. To enhance their psychosocial functioning, young people and carers want lived-experience workers to provide practical wrap-around support, and mental health services that integrate health and social care, and are flexible, responsive and safe. These findings will inform the co-design of a community-based psychosocial service to support young people experiencing severe mental illness.
从年轻人的角度出发,对于理解满足患有精神疾病的年轻人更广泛心理社会需求的障碍和促进因素的关注有限。这对于推进当地的证据基础以及为服务设计和发展提供信息是必要的。这项定性研究的目的是探索年轻人(10至25岁)及其照顾者在心理健康服务方面的经历,重点关注服务支持年轻人心理社会功能的障碍和促进因素。
本研究于2022年在澳大利亚塔斯马尼亚州开展。有精神疾病生活经历的年轻人参与了本研究的各个阶段。对32名年龄在10至25岁、有精神疾病经历的年轻人以及29名照顾者(n = 12对亲子)进行了半结构化访谈。定性分析以社会生态框架为指导,以确定个体(年轻人/照顾者层面)、人际层面和服务/系统层面的障碍和促进因素。
年轻人和照顾者在社会生态框架的各个层面确定了八个障碍和六个促进因素。障碍包括:在个体层面:(1)年轻人心理社会需求的复杂性和(2)对现有服务缺乏认识/了解;在人际层面:(3)与成年人的负面经历和(4)服务与家庭之间沟通不畅;在系统层面:(5)服务不足;(6)等待时间长;(7)服务可及性有限;以及(8)中间环节缺失。促进因素包括:在个体层面:(1)对照顾者的教育;在人际层面:(2)积极的治疗关系和(3)照顾者的倡导/支持;在系统层面:(4)灵活或响应性强的服务、(5)解决心理社会因素的服务;以及(6)安全的服务环境。
本研究确定了获取和利用心理健康服务的关键障碍和促进因素,这可能为服务设计、发展、政策和实践提供信息。为了增强他们的心理社会功能,年轻人和照顾者希望有生活经验的工作者提供实际的全方位支持,以及整合健康和社会护理、灵活、响应性强且安全的心理健康服务。这些发现将为共同设计一项基于社区的心理社会服务提供信息,以支持患有严重精神疾病的年轻人。