Department of Plastic and Reconstructive Surgery, Radboud University Medical Centre, Radboud Institute for Health Sciences, Nijmegen, The Netherlands.
Translational Health Sciences, University of Bristol, Bristol, UK.
J Burn Care Res. 2024 Jan 5;45(1):112-119. doi: 10.1093/jbcr/irad089.
Cutaneous burn scars impact various aspects of life. Scar treatment is mainly evaluated on scar characteristics. Consensus is needed on which other outcomes to capture, ensuring they are relevant to patients, clinicians, and researchers. The aim of this study was to identify, discuss and analyze outcomes related to cutaneous burn scarring, incorporating the voice of patients and views of healthcare professionals. For this, a Delphi process consisting of two survey rounds and a consensus meeting was initiated. Burn scar-related outcomes were identified from an existing comprehensive list of 100 outcomes by an international panel of patients, healthcare professionals and researchers. Fifty-nine outcomes were identified from the Delphi process as related to scarring (≥60% votes). Outcomes less impactful in relation to scar outcomes included psychosocial issues, sense of normality, understanding of treatment, costs and systemic issues. To represent a holistic assessment of outcomes related to cutaneous burn scarring, this Delphi process established a battery of outcomes currently included in scar quality assessment tools, and an expanded set of less frequently considered outcomes. Future work in this area must include the patient voice from developing countries. This is essential to identify globally applicable outcomes related to scarring.
皮肤烧伤疤痕会影响生活的方方面面。疤痕治疗主要根据疤痕特征进行评估。需要就其他应捕捉的结果达成共识，确保这些结果与患者、临床医生和研究人员相关。本研究的目的是确定、讨论和分析与皮肤烧伤疤痕相关的结果，同时纳入患者和医疗保健专业人员的意见。为此，启动了一项由两轮调查和一次共识会议组成的 Delphi 流程。由国际患者、医疗保健专业人员和研究人员组成的小组从现有的 100 种结果综合清单中确定了与疤痕相关的结果。德尔菲法确定了 59 个与疤痕相关的结果（≥60%的选票）。与疤痕结果关联度较低的结果包括心理社会问题、对正常状态的理解、对治疗的理解、成本和系统问题。为了全面评估与皮肤烧伤疤痕相关的结果，该 Delphi 流程确定了目前包含在疤痕质量评估工具中的一系列结果，以及一组不太常考虑的扩展结果。该领域的未来工作必须包括来自发展中国家的患者声音。这对于确定与疤痕相关的全球适用结果至关重要。
