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对西班牙裔照顾者的全面理解:关注创新方法与验证

Comprehensive Understanding of Hispanic Caregivers: Focus on Innovative Methods and Validations.

作者信息

Sehar Ujala, Rawat Priyanka, Choudhury Moumita, Boles Annette, Culberson John, Khan Hafiz, Malhotra Keya, Basu Tanisha, Reddy P Hemachandra

机构信息

Department of Internal Medicine, Texas Tech University Health Sciences Center, Lubbock, TX, USA.

Department of Speech, Language and Hearing Sciences, School Health Professions, Texas Tech University Health Sciences Center, Lubbock, TX, USA.

出版信息

J Alzheimers Dis Rep. 2023 Jun 6;7(1):557-574. doi: 10.3233/ADR-220094. eCollection 2023.

Abstract

Alzheimer's disease (AD) and Alzheimer's disease-related disorders (ADRD) are late-onset, age-related progressive neurodegenerative disorders, characterized by memory loss and multiple cognitive impairments. Current research indicates that Hispanic Americans are at an increased risk for AD/ADRD and other chronic conditions such as diabetes, obesity, hypertension, and kidney disease, and given their rapid growth in numbers, this may contribute to a greater incidence of these disorders. This is particularly true for the state of Texas, where Hispanics are the largest group of ethnic minorities. Currently, AD/ADRD patients are taken care by family caregivers, which puts a tremendous burden on family caregivers who are usually older themselves. The management of disease and providing necessary/timely support for patients with AD/ADRD is a challenging task. Family caregivers support these individuals in completing basic physical needs, maintaining a safe living environment, and providing necessary planning for healthcare needs and end-of-life decisions for the remainder of the patient's lifetime. Family caregivers are mostly over 50 years of age and provide all-day care for individuals with AD/ADRD, while also managing their health. This takes a significant toll on the caregiver's own physiological, mental, behavioral, and social health, in addition to low economic status. The purpose of our article is to assess the status of Hispanic caregivers. We also focused on effective interventions for family caregivers of persons with AD/ADRD involving both educational and psychotherapeutic components, and a group format further enhances effectiveness. Our article discusses innovative methods and validations to support Hispanic family caregivers in rural West Texas.

摘要

阿尔茨海默病(AD)及阿尔茨海默病相关障碍(ADRD)是迟发性、与年龄相关的进行性神经退行性疾病,其特征为记忆丧失和多种认知障碍。当前研究表明,西班牙裔美国人患AD/ADRD及其他慢性疾病(如糖尿病、肥胖症、高血压和肾脏疾病)的风险增加,鉴于其数量的快速增长,这可能导致这些疾病的发病率更高。德克萨斯州的情况尤其如此,该州西班牙裔是最大的少数族裔群体。目前,AD/ADRD患者由家庭护理人员照料,这给通常自身年龄也较大的家庭护理人员带来了巨大负担。对AD/ADRD患者进行疾病管理并提供必要/及时的支持是一项具有挑战性的任务。家庭护理人员帮助这些患者满足基本身体需求、维持安全的生活环境,并为患者余生的医疗需求和临终决策提供必要规划。家庭护理人员大多超过50岁,为AD/ADRD患者提供全天护理,同时还要管理自己的健康。这除了会导致经济状况不佳外,还会对护理人员自身的生理、心理、行为和社会健康造成重大损害。我们文章的目的是评估西班牙裔护理人员的状况。我们还重点关注了针对AD/ADRD患者家庭护理人员的有效干预措施,这些措施包含教育和心理治疗成分,而小组形式可进一步提高有效性。我们的文章讨论了支持西德克萨斯农村地区西班牙裔家庭护理人员的创新方法和验证措施。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9bae/10259076/c6fe872d4278/adr-7-adr220094-g001.jpg

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