Division of Pediatric Neurology, Department of Pediatrics, K.J. Somaiya Medical College, Hospital & Research Centre, Mumbai, Maharashtra, India.
Division of Pediatric Neurology, Department of Pediatrics, University of Michigan, Ann Arbor, USA.
Indian J Pediatr. 2023 Nov;90(11):1127-1133. doi: 10.1007/s12098-023-04658-x. Epub 2023 Jun 20.
Transition of care is the planned, coordinated movement from a child and family environment of pediatrics to a patient centered adult care setting. Epilepsy is a common neurological condition. While seizures remit in a proportion of children, in around 50% of children seizures persist into adulthood. Also, with advances in diagnostics and therapeutics, more children with epilepsy survive into adulthood, and need services of adult neurologists. Clinical guidelines from the American Academy of Pediatrics, American College of Family Physicians and American College of Physicians called for "supporting the healthcare transition from adolescence to adulthood", but this occurs in a minority of patients. There are several challenges to implementing transition of care at the level of the patient and family, pediatric and adult neurologist and with systems of care. Transition needs vary based on the type of epilepsy and epilepsy syndrome and presence of co-morbidities. Transition clinics are essential to effective transfer of care, but implementation remains extremely variable, with a variety of clinics or program structures in countries around the world. There is a need to develop multidisciplinary transition clinics, enhance physician education and establish national guidelines for this important process to be put into practice. Further studies are also needed to develop best practices and assess outcomes of well executed transition programs on epilepsy.
过渡护理是指从儿科的儿童和家庭环境到以患者为中心的成人护理环境的计划性、协调性转移。癫痫是一种常见的神经系统疾病。虽然一部分儿童的癫痫发作会自行缓解,但仍有 50%左右的儿童会持续到成年。此外,随着诊断和治疗的进步,越来越多的癫痫儿童能够存活到成年,需要成人神经科医生的服务。美国儿科学会、美国家庭医生学会和美国医师学会的临床指南呼吁“支持从青春期到成年的医疗过渡”,但只有少数患者能够实现这一目标。在患者和家庭、儿科和成人神经科医生以及医疗保健系统层面,实施过渡护理都面临着诸多挑战。过渡需求取决于癫痫的类型和癫痫综合征以及合并症的存在。过渡诊所对于有效的护理转移至关重要,但实施情况仍然差异极大,世界各地的诊所或项目结构各不相同。需要建立多学科过渡诊所,加强医生教育,并为这一重要过程制定国家指南,以付诸实践。此外,还需要进一步研究,以制定最佳实践,并评估执行良好的过渡计划对癫痫的结果。