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Transition of Care for Pediatric Neurologic Disorders - Are We There Yet?

作者信息

Vinayan Kollencheri Puthenveettil, Saini Arushi Gahlot, Jyotsna Aruna Setumadhava, Singh Gagandeep, Aneja Satinder, Jayalakshmi Sita, Kanhere Sujata, Sylaja P N, Panigrahi Debasis, Verma Anoop Kumar

机构信息

Department of Pediatric Neurology, Amrita Institute of Medical Sciences, Cochin, Kerala, India.

Department of Pediatrics, Advanced Pediatric Center Postgraduate Institute of Medical Education and Research, Chandigarh, India.

出版信息

Ann Indian Acad Neurol. 2025 Jan 1;28(1):26-31. doi: 10.4103/aian.aian_521_24. Epub 2025 Jan 20.

DOI:10.4103/aian.aian_521_24
PMID:39834047
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11892974/
Abstract
摘要

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本文引用的文献

1
The Indian Academy of Pediatrics and Directorate General of Health Services, Government of India White Paper on Transition of Care for Youth with Special Health Care Needs.印度儿科学会和印度政府卫生服务总局关于有特殊健康护理需求的青年过渡护理的白皮书。
Indian Pediatr. 2024 May 15;61(5):475-481. Epub 2024 Mar 19.
2
Transition of Care- The Time is Now!医疗护理的过渡——就是现在！
Indian J Pediatr. 2023 Nov;90(11):1123-1126. doi: 10.1007/s12098-023-04682-x. Epub 2023 Aug 18.
3
Transition of Care in Epilepsy.癫痫患者的照护转移
Indian J Pediatr. 2023 Nov;90(11):1127-1133. doi: 10.1007/s12098-023-04658-x. Epub 2023 Jun 20.
4
Duchenne Muscular Dystrophy Gene Therapy in 2023: Status, Perspective, and Beyond.2023 年的杜氏肌营养不良症基因治疗：现状、展望及其他。
Hum Gene Ther. 2023 May;34(9-10):345-349. doi: 10.1089/hum.2023.29242.ddu.
5
Transition of Care in Adolescents with Epilepsy: Perspective of Pediatric Neurologists in India.青少年癫痫患者的过渡期护理：印度儿科神经学家的观点。
Indian J Pediatr. 2023 Nov;90(11):1149-1151. doi: 10.1007/s12098-023-04579-9. Epub 2023 May 4.
6
Epilepsy Smart Schools: Educational intervention improves knowledge, attitude, and practices regarding epilepsy among school teachers.癫痫智能学校：教育干预提高了学校教师对癫痫的知识、态度和实践。
Epilepsy Behav. 2023 Apr;141:109138. doi: 10.1016/j.yebeh.2023.109138. Epub 2023 Mar 3.
7
Neuromuscular disorders and transition from pediatric to adult care in a multidisciplinary perspective: a narrative review of the scientific evidence and current debate.神经肌肉疾病及多学科视角下的儿科至成人医疗过渡：对科学证据和当前争议的叙述性综述。
Acta Myol. 2022 Dec 31;41(4):188-200. doi: 10.36185/2532-1900-083. eCollection 2022.
8
Healthcare Transition in Inherited Metabolic Disorders-Is a Collaborative Approach between US and European Centers Possible?遗传性代谢疾病的医疗照护过渡——美国和欧洲中心之间采用合作方式是否可行？
J Clin Med. 2022 Sep 30;11(19):5805. doi: 10.3390/jcm11195805.
9
Essen transition model for neuromuscular diseases.埃森神经肌肉疾病过渡模型
Neurol Res Pract. 2022 Sep 5;4(1):41. doi: 10.1186/s42466-022-00206-8.
10
The management of transitional care of patients affected by phenylketonuria in Italy: Review and expert opinion.意大利患者苯丙酮尿症过渡期管理：综述与专家意见。
Mol Genet Metab. 2022 Jun;136(2):94-100. doi: 10.1016/j.ymgme.2022.04.004. Epub 2022 Apr 27.