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Reliance on Advocacy is the Symptom Not the Disease.

作者信息

Gerido Lynette Hammond

机构信息

University of Michigan School of Public Health.

出版信息

Am J Bioeth. 2023 Jul;23(7):86-88. doi: 10.1080/15265161.2023.2207540.

DOI:10.1080/15265161.2023.2207540
PMID:37339294
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10389291/
Abstract
摘要

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Am J Bioeth. 2023 Jul;23(7):17-26. doi: 10.1080/15265161.2023.2207500. Epub 2023 May 19.
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From "Ought" to "Is": Surfacing Values in Patient and Family Advocacy in Rare Diseases.从“应当”到“是”：罕见病患者及家属权益倡导中的价值彰显
Am J Bioeth. 2021 Dec;21(12):1-3. doi: 10.1080/15265161.2021.1996801.
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Comparison of US Federal and Foundation Funding of Research for Sickle Cell Disease and Cystic Fibrosis and Factors Associated With Research Productivity.比较美国联邦政府和基金会对镰状细胞病和囊性纤维化研究的资助，以及与研究生产力相关的因素。
JAMA Netw Open. 2020 Mar 2;3(3):e201737. doi: 10.1001/jamanetworkopen.2020.1737.
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Vulnerability and unmet health care needs. The influence of multiple risk factors.脆弱性与未满足的医疗保健需求。多种风险因素的影响。
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