基于微信的远程随访管理减轻了耐药性癫痫患儿家长的家庭护理负担和焦虑：一项随机对照研究。
WeChat-based remote follow-up management reduces the burden of home care and anxiety on parents of children with refractory epilepsy: A randomized controlled study.
机构信息
Department of Neurosurgery, the First Affiliated Hospital, Fujian Medical University, Fuzhou, Fujian, China.
Department of Neurosurgery, National Regional Medical Center, Binhai Campus of the First Affiliated Hospital, Fujian Medical University, Fuzhou, China.
出版信息
Medicine (Baltimore). 2023 Jun 23;102(25):e34070. doi: 10.1097/MD.0000000000034070.
OBJECTIVE
The present research was designed to study the effect of WeChat-based remote follow-up management on the burden of home care and anxiety on parents of children with refractory epilepsy.
METHODS
161 refractory epileptic children were included in this study. They were divided into control group and WeChat group according to their management protocols after discharge, namely, control group with traditional follow-up (n = 81) and WeChat group with remote follow-up based on WeChat (n = 81). We evaluated home care burden by family caregiver task Inventory (FCTI) scale and zarit burden interview (ZBI) scale, and evaluated negative emotion by self-rating anxiety Scale (SAS) scale and self-Rating depression scale (SDS) scale.
RESULTS
There was no significant difference in the demographic characteristics of epileptic children and their parents and the scores of FCTI, ZBI, SAS and SDS before treatment between the 2 groups (all P > .05), and the score of FCTI (20.86 ± 4.26), ZBI (39.63 ± 4.46), SAS (44.49 ± 4.15) and SDS (50.02 ± 4.13) in WeChat group were all significantly lower than the score of FCTI (25.25 ± 3.71), ZBI (45.47 ± 4.61), SAS (52.75 ± 4.93) and SDS (54.51 ± 6.59) in control group (all P < .05).
CONCLUSION
WeChat-based remote follow-up management reduces the burden of home care and anxiety on parents of children with refractory epilepsy.
目的
本研究旨在探讨基于微信的远程随访管理对难治性癫痫患儿家长家庭照护负担和焦虑的影响。
方法
将 161 例难治性癫痫患儿根据出院后管理方案分为对照组（n=81）和微信组（n=81），对照组采用传统随访，微信组采用基于微信的远程随访。采用家庭照顾者任务量表（FCTI）和照顾者负担量表（ZBI）评估家庭照护负担，采用焦虑自评量表（SAS）和抑郁自评量表（SDS）评估负性情绪。
结果
两组患儿及其家长的人口学特征以及 FCTI、ZBI、SAS 和 SDS 评分治疗前比较差异均无统计学意义（均 P＞0.05），微信组 FCTI（20.86±4.26）、ZBI（39.63±4.46）、SAS（44.49±4.15）和 SDS（50.02±4.13）评分均明显低于对照组的 FCTI（25.25±3.71）、ZBI（45.47±4.61）、SAS（52.75±4.93）和 SDS（54.51±6.59）（均 P＜0.05）。
结论
基于微信的远程随访管理可降低难治性癫痫患儿家长的家庭照护负担和焦虑程度。
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