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探索支持癌症患者就业干预措施的可接受性:对癌症幸存者、医疗保健提供者和雇主的定性研究。

Exploring Acceptability of Employment Interventions to Support People Living With Cancer: Qualitative Study of Cancer Survivors, Health Care Providers, and Employers.

作者信息

Forcino Rachel C, Rotenberg Sivan, Morrissette Kali J, Godzik Cassandra M, Lichtenstein Jonathan D, Schiffelbein Jenna E, Stevens Courtney J, Sundar Vidya, Brucker Debra L, Connolly Deirdre, Keysor Julie, Lyons Kathleen Doyle

机构信息

The Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine, Dartmouth College, Lebanon, NH, United States.

Department of Psychiatry, Dartmouth-Hitchcock Medical Center, Lebanon, NH, United States.

出版信息

JMIR Form Res. 2023 Jun 26;7:e47263. doi: 10.2196/47263.

Abstract

BACKGROUND

Employment contributes to cancer survivors' quality of life, but this population faces a variety of challenges when working during and after treatment. Factors associated with work outcomes among cancer survivors include disease and treatment status, work environment, and social support. While effective employment interventions have been developed in other clinical contexts, existing interventions have demonstrated inconsistent effectiveness in supporting cancer survivors at work. We conducted this study as a preliminary step toward program development for employment support among survivors at a rural comprehensive cancer center.

OBJECTIVE

We aimed (1) to identify supports and resources that stakeholders (cancer survivors, health care providers, and employers) suggest may help cancer survivors to maintain employment and (2) to describe stakeholders' views on the advantages and disadvantages of intervention delivery models that incorporate those supports and resources.

METHODS

We conducted a descriptive study collecting qualitative data from individual interviews and focus groups. Participants included adult cancer survivors, health care providers, and employers living or working in the Vermont-New Hampshire catchment area of the Dartmouth Cancer Center in Lebanon, New Hampshire. We grouped interview participants' recommended supports and resources into 4 intervention delivery models, which ranged on a continuum from less to more intensive to deliver. We then asked focus group participants to discuss the advantages and disadvantages of each of the 4 delivery models.

RESULTS

Interview participants (n=45) included 23 cancer survivors, 17 health care providers, and 5 employers. Focus group participants (n=12) included 6 cancer survivors, 4 health care providers, and 2 employers. The four delivery models were (1) provision of educational materials, (2) individual consultation with cancer survivors, (3) joint consultation with both cancer survivors and their employers, and (4) peer support or advisory groups. Each participant type acknowledged the value of providing educational materials, which could be crafted to improve accommodation-related interactions between survivors and employers. Participants saw usefulness in individual consultation but expressed concern about the costs of program delivery and potential mismatches between consultant recommendations and the limits of what employers can provide. For joint consultation, employers liked being part of the solution and the possibility of enhanced communication. Potential drawbacks included additional logistical burden and its perceived generalizability to all types of workers and workplaces. Survivors and health care providers viewed the efficiency and potency of peer support as benefits of a peer advisory group but acknowledged the sensitivity of financial topics as a possible disadvantage of addressing work challenges in a group setting.

CONCLUSIONS

The 3 participant groups identified both common and unique advantages and disadvantages of the 4 delivery models, reflecting varied barriers and facilitators to their potential implementation in practice. Theory-driven strategies to address implementation barriers should play a central role in further intervention development.

摘要

背景

就业有助于提高癌症幸存者的生活质量,但这一群体在治疗期间和治疗后工作时面临着各种挑战。与癌症幸存者工作成果相关的因素包括疾病和治疗状况、工作环境和社会支持。虽然在其他临床环境中已经开发出了有效的就业干预措施,但现有的干预措施在支持癌症幸存者工作方面的效果并不一致。我们开展这项研究,作为在农村综合癌症中心为幸存者提供就业支持的项目开发的初步步骤。

目的

我们旨在(1)确定利益相关者(癌症幸存者、医疗保健提供者和雇主)建议的可能有助于癌症幸存者维持就业的支持和资源,以及(2)描述利益相关者对纳入这些支持和资源的干预实施模式的优缺点的看法。

方法

我们进行了一项描述性研究,通过个人访谈和焦点小组收集定性数据。参与者包括居住或工作在新罕布什尔州黎巴嫩市达特茅斯癌症中心佛蒙特 - 新罕布什尔集水区的成年癌症幸存者、医疗保健提供者和雇主。我们将访谈参与者推荐的支持和资源分为4种干预实施模式,这些模式在从低强度到高强度的连续统一体上有所不同。然后,我们要求焦点小组参与者讨论这4种实施模式各自的优缺点。

结果

访谈参与者(n = 45)包括23名癌症幸存者、17名医疗保健提供者和5名雇主。焦点小组参与者(n = 12)包括6名癌症幸存者、4名医疗保健提供者和2名雇主。这四种实施模式分别是:(1)提供教育材料;(2)与癌症幸存者进行个别咨询;(3)与癌症幸存者及其雇主进行联合咨询;(4)同伴支持或咨询小组。每种参与者类型都认可提供教育材料的价值,这些材料可以精心制作,以改善幸存者与雇主之间与工作适应相关的互动。参与者认为个别咨询有用,但对项目实施成本以及咨询师建议与雇主所能提供的限度之间可能存在的不匹配表示担忧。对于联合咨询,雇主喜欢成为解决方案的一部分以及加强沟通的可能性。潜在的缺点包括额外的后勤负担以及其对所有类型的工人和工作场所的普遍适用性。幸存者和医疗保健提供者认为同伴支持的效率和效力是同伴咨询小组的优点,但也承认财务话题的敏感性可能是在小组环境中解决工作挑战的一个缺点。

结论

这3个参与者群体确定了4种实施模式的共同和独特的优缺点,反映了在实践中潜在实施这些模式的各种障碍和促进因素。解决实施障碍的理论驱动策略应在进一步的干预开发中发挥核心作用。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a9bd/10337405/1091ea3a4b0e/formative_v7i1e47263_fig1.jpg

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