Hernandez Raymond, Schneider Stefan, Pham Loree, Pyatak Elizabeth A
Dornsife Center for Economic & Social Research, University of Southern California, 635 Downey Way, VPD 405, Los Angeles, CA 90089-3332 USA.
Department of Psychology, University of Southern California, Los Angeles, CA 90089 USA.
Appl Res Qual Life. 2023 Apr 20:1-23. doi: 10.1007/s11482-023-10171-2.
Relationships between activity engagement and health related quality of life (HRQOL) can differ based on the level of analyses. For instance, greater exercise on average may be linked with lower fatigue across individuals (between-person level), whereas the momentary experience of exercise may be associated with increased fatigue within an individual (within-person level). Disentangling the between- and within-person associations between everyday activities and HRQOL outcomes may provide insights for personalized lifestyle-oriented health promotion efforts for individuals with chronic conditions. The purpose of this paper was to examine the between- and within-person relationships between activity engagement and HRQOL relevant measures in a sample of 92 workers with type 1 diabetes (T1D), from whom we collected ecological momentary assessment (EMA) data 5-6 times daily over 14 days. At each EMA prompt, information was collected on the activity participants just engaged in, and HRQOL relevant metrics (e.g. mental health, blood glucose, fatigue, functioning). Momentary reports of "caring for others", and more frequently "caring for others", were both associated with decreased HRQOL. Reporting napping 10% or more of the time during a person's waking hours, but not the momentary experience of napping, was associated with decreased HRQOL. Momentary reports of sleeping were associated with low activity satisfaction relative to other activities, but higher activity importance. Study results provided a quantitative representation of the lived experience of T1D covering multiple types of activity engagement, which potentially has health promotion implications for workers with T1D.
The online version contains supplementary material available at 10.1007/s11482-023-10171-2.
活动参与度与健康相关生活质量（HRQOL）之间的关系可能因分析层面而异。例如，平均而言，更多的锻炼可能与个体间较低的疲劳感相关（个体间层面），而锻炼的即时体验可能与个体内疲劳感增加相关（个体内层面）。厘清日常活动与HRQOL结果之间的个体间和个体内关联，可能为针对慢性病患者的个性化生活方式健康促进努力提供见解。本文的目的是在92名1型糖尿病（T1D）患者样本中，研究活动参与度与HRQOL相关指标之间的个体间和个体内关系，我们在14天内每天收集5 - 6次这些患者的生态瞬时评估（EMA）数据。在每次EMA提示时，收集参与者刚刚进行的活动信息以及HRQOL相关指标（如心理健康、血糖、疲劳、功能）。“照顾他人”的瞬时报告，以及更频繁的“照顾他人”，均与HRQOL下降相关。报告在清醒时间的10%或更多时间内小睡，但不是小睡的即时体验，与HRQOL下降相关。睡眠的瞬时报告与相对于其他活动的低活动满意度相关，但活动重要性较高。研究结果提供了T1D患者生活经历的定量描述，涵盖多种类型的活动参与度，这可能对T1D患者的健康促进具有启示意义。
在线版本包含可在10.1007/s11482 - 023 - 10171 - 2获取的补充材料。
