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对名人罕见病在线研究的影响:贾斯汀·比伯与拉姆齐·亨特综合征的奇特案例

Impact on online research on celebrities' uncommon diseases: the curious case of Justin Bieber and Ramsay Hunt syndrome.

作者信息

Santangelo Omar Enzo, Gianfredi Vincenza, Provenzano Sandro

机构信息

Regional Health Care and Social Agency of Lodi, ASST Lodi, piazza Ospitale 10, 26900 Lodi, Italy.

Department of Biomedical Sciences for Health, University of Milan, Via Pascal, 36, 20133 Milan, Italy.

出版信息

Z Gesundh Wiss. 2023 May 22:1-9. doi: 10.1007/s10389-023-01940-2.

Abstract

AIM

We investigated how to use Internet user searches to gauge the impact of a celebrity illness on global public interest.

METHODS

The study design is cross-sectional. Data on Internet searches were obtained from Google Trends (GT) for the period between 2017-2022 using the search words "Ramsay Hunt syndrome" (RHS), "Ramsay Hunt syndrome type 2," "Herpes zoster," and "Justin Bieber." The frequency of specific page views for "Ramsay Hunt syndrome," "Ramsay Hunt syndrome type 1," Ramsay Hunt syndrome type 2," Ramsay Hunt syndrome type 3," "Herpes zoster," and "Justin Bieber" were collected via a Wikipedia analysis tool that shows the number of times a specific page is viewed. Statistical analyses were performed using the Pearson (r) and Spearman's rank correlation coefficient (rho).

RESULTS

GT data, in 2022, show a strong correlation for Justin Bieber and RHS or RHS type 2 (r = 0.75); similarly, Wikipedia data show a strong correlation for Justin Bieber and the others explored terms (r > 0.75). Furthermore, the correlation was strong between GT and Wikipedia for RHS (rho = 0.89) and RHS type 2 (rho = 0.88).

CONCLUSIONS

The peak search times for the GT and Wikipedia pages were during the same period. Useful new tools and analyses of Internet traffic data may be effective in assessing the impact of announced celebrity uncommon illnesses on global public interest.

摘要

目的

我们研究了如何利用互联网用户搜索来衡量名人疾病对全球公众关注度的影响。

方法

本研究设计为横断面研究。使用搜索词“拉姆齐·亨特综合征”(RHS)、“2型拉姆齐·亨特综合征”、“带状疱疹”和“贾斯汀·比伯”,从谷歌趋势(GT)获取2017年至2022年期间的互联网搜索数据。通过一个维基百科分析工具收集“拉姆齐·亨特综合征”、“1型拉姆齐·亨特综合征”、“2型拉姆齐·亨特综合征”、“3型拉姆齐·亨特综合征”、“带状疱疹”和“贾斯汀·比伯”的特定页面浏览频率,该工具显示特定页面的浏览次数。使用皮尔逊(r)和斯皮尔曼等级相关系数(rho)进行统计分析。

结果

2022年的GT数据显示,贾斯汀·比伯与RHS或2型RHS之间存在强相关性(r = 0.75);同样,维基百科数据显示,贾斯汀·比伯与其他搜索词之间存在强相关性(r > 0.75)。此外,GT与维基百科之间对于RHS(rho = 0.89)和2型RHS(rho = 0.88)的相关性很强。

结论

GT和维基百科页面的搜索高峰时间在同一时期。有用的互联网流量数据新工具和分析可能有效地评估已公布的名人罕见疾病对全球公众关注度的影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/50d5/10202347/fcce9e5d599a/10389_2023_1940_Fig1_HTML.jpg

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