Johnston Kylie N, Burgess Rebecca, Kochovska Slavica, Williams Marie T
Allied Health and Human Performance, Innovation, IMPlementation and Clinical Translation in Health (IIMPACT), University of South Australia, Adelaide, SA 5001, Australia.
Faculty of Science, Medicine and Health, University of Wollongong, Wollongong, NSW 2522, Australia.
Healthcare (Basel). 2023 Jun 8;11(12):1686. doi: 10.3390/healthcare11121686.
Chronic breathlessness is a multidimensional, unpleasant symptom common to many health conditions. The Common-Sense Model of Self-Regulation (CSM) was developed to help understand how individuals make sense of their illness. This model has been underused in the study of breathlessness, especially in considering how information sources are integrated within an individual's cognitive and emotional representations of breathlessness. This descriptive qualitative study explored breathlessness beliefs, expectations, and language preferences of people experiencing chronic breathlessness using the CSM. Twenty-one community-dwelling individuals living with varying levels of breathlessness-related impairment were purposively recruited. Semi-structured interviews were conducted with questions reflecting components of the CSM. Interview transcripts were synthesized using deductive and inductive content analysis. Nineteen analytical categories emerged describing a range of cognitive and emotional breathlessness representations. Representations were developed through participants' personal experience and information from external sources including health professionals and the internet. Specific words and phrases about breathlessness with helpful or nonhelpful connotations were identified as contributors to breathlessness representations. The CSM aligns with current multidimensional models of breathlessness and provides health professionals with a robust theoretical framework for exploring breathlessness beliefs and expectations.
慢性呼吸急促是一种多维度的、令人不适的症状，在许多健康状况中都很常见。自我调节常识模型（CSM）旨在帮助理解个体如何理解自己的疾病。该模型在呼吸急促研究中的应用不足，尤其是在考虑信息来源如何整合到个体对呼吸急促的认知和情感表征方面。这项描述性定性研究使用CSM探索了慢性呼吸急促患者的呼吸急促信念、期望和语言偏好。目的抽样招募了21名居住在社区、患有不同程度呼吸急促相关功能障碍的个体。进行了半结构化访谈，问题反映了CSM的组成部分。访谈记录通过演绎和归纳内容分析进行综合。出现了19个分析类别，描述了一系列认知和情感呼吸急促表征。这些表征是通过参与者的个人经历以及包括医疗专业人员和互联网在内的外部来源的信息形成的。关于呼吸急促的具有有益或无益内涵的特定词语和短语被确定为呼吸急促表征的促成因素。CSM与当前的呼吸急促多维度模型相一致，为医疗专业人员提供了一个强大的理论框架，用于探索呼吸急促信念和期望。
