Peninsula Childhood Disability Research Unit (PenCRU) and NIHR Applied Research Collaboration South West Peninsula (PenARC), University of Exeter Medical School, University of Exeter, Exeter, UK.
NIHR Applied Research Collaboration South West Peninsula (PenARC), University of Exeter, Exeter, UK.
Health Expect. 2023 Oct;26(5):2050-2063. doi: 10.1111/hex.13812. Epub 2023 Jul 4.
Parent carers of disabled children are at increased risk of physical and mental health problems. The Healthy Parent Carers (HPC) programme is a manualised peer-led group-based programme that aims to promote parent carer health and wellbeing. Previously, the programme had been delivered in person, with recruitment and delivery managed in a research context. This study explored implementation by two delivery partner organisations in the United Kingdom. Facilitator Training and Delivery Manuals were modified for online delivery using Zoom due to COVID-19.
The study methodology utilised the Replicating Effective Programs framework. A series of stakeholder workshops informed the development of the Implementation Logic Model and an Implementation Package. After delivering the programme, delivery partner organisations and facilitators participated in a workshop to discuss experiences of implementing the programme. A wider group of stakeholders, including commissioners, Parent Carer Forums and charity organisations representatives and researchers subsequently met to consider the sustainability and potential barriers to delivering the programme outside the research context.
This study explored implementation by two delivery partner organisations in the United Kingdom that were able to recruit facilitators, who we trained, and they recruited participants and delivered the programme to parent carers in different localities using Zoom. The co-created Implementation Logic Model and Implementation Package were subsequently refined to enable the further roll-out of the programme with other delivery partner organisations.
This study provides insight and understanding of how the HPC programme can be implemented sustainably outside of the research context. Further research will evaluate the effectiveness of the programme and refine the implementation processes.
Parent carers, delivery partner organisation staff and service commissioners were consulted on the design, delivery and reporting of the research.
残疾儿童的父母照顾者面临身心健康问题的风险增加。健康父母照顾者（HPC）计划是一个由同行领导的基于小组的标准化计划，旨在促进父母照顾者的健康和幸福感。该计划以前是在面对面的情况下进行的，招募和交付工作都是在研究背景下进行的。本研究探讨了英国两个交付伙伴组织的实施情况。由于 COVID-19，使用 Zoom 对 facilitator Training and Delivery Manuals 进行了修改，以实现在线交付。
该研究方法利用了复制有效计划框架。一系列利益相关者研讨会为制定实施逻辑模型和实施包提供了信息。在交付计划后，交付伙伴组织和 facilitators 参加了一个研讨会，讨论实施计划的经验。随后，包括委员会、父母照顾者论坛和慈善组织代表以及研究人员在内的更广泛的利益相关者小组开会，考虑在研究背景之外提供该计划的可持续性和潜在障碍。
本研究探讨了英国的两个交付伙伴组织的实施情况，这两个组织能够招募 facilitators，我们对他们进行了培训，他们在不同的地方使用 Zoom 招募参与者并向父母照顾者交付了该计划。随后对共同创建的实施逻辑模型和实施包进行了细化，以便其他交付伙伴组织进一步推广该计划。
本研究提供了有关如何在研究背景之外可持续地实施 HPC 计划的见解和理解。进一步的研究将评估该计划的有效性并细化实施过程。
在研究的设计、交付和报告中，咨询了父母照顾者、交付伙伴组织工作人员和服务委员会。
