Halim Nur Atiyah Abdul, Sopri Nur Hikmah Ahmad, Wong Yuet Yen, Mustafa Qarem Mohamed, Lean Qi Ying
Faculty of Pharmacy, Universiti Teknologi MARA, Cawangan Pulau Pinang, Kampus Bertam, Kepala Batas, Pulau Pinang, Malaysia.
Collaborative Drug Discovery Research (CDDR) Group, Faculty of Pharmacy, University Teknologi MARA (UiTM) Cawangan Selangor, Kampus Puncak Alam, Selangor, Malaysia.
Chronic Illn. 2024 Dec;20(4):640-654. doi: 10.1177/17423953231185385. Epub 2023 Jul 4.
This study aimed to assess the perceptions towards chronic disease self-management and its program among patients with chronic diseases.
A cross-sectional study using pre-validated questionnaire was conducted among patients with chronic diseases at outpatient pharmacy in a hospital in Penang, Malaysia from April to June 2021.
Of 270 patients participated in this study, 87.8% were interested in chronic disease self-management. Nonetheless, they faced common barriers including time constraint (71.1%), no health monitoring devices (44.1%) and poor health knowledge (43.0%). More than half of the patients expressed that having a better knowledge of the disease and its treatment (64.1%), getting supportive guidance from healthcare providers (59.6%) and having monitoring devices (58.1%) were the top three facilitators to self-management. The patients preferred chronic disease self-management programs that (a) discuss the topic of motivation (b) are available both as mobile applications and hands-on training, (c) individual session, (d) range between 1 and 5 sessions with a duration of 1 to 2 h/session, (e) occurring on monthly basis, (f) conducted by doctor or healthcare professionals and (g) fully sponsored by government or at affordable fee.
The findings serve as pre-requisite step in future design and development of chronic disease self-management program, targeting the patients' needs and preferences.
本研究旨在评估慢性病患者对慢性病自我管理及其项目的看法。
2021年4月至6月，在马来西亚槟城一家医院的门诊药房，对慢性病患者进行了一项使用预先验证问卷的横断面研究。
在参与本研究的270名患者中，87.8%对慢性病自我管理感兴趣。尽管如此，他们面临着一些常见障碍，包括时间限制（71.1%）、没有健康监测设备（44.1%）和健康知识匮乏（43.0%）。超过一半的患者表示，对疾病及其治疗有更好的了解（64.1%）、获得医疗服务提供者的支持指导（59.6%）和拥有监测设备（58.1%）是自我管理的三大促进因素。患者更喜欢这样的慢性病自我管理项目：（a）讨论动机主题；（b）既有移动应用程序又有实践培训；（c）个人课程；（d）课程为1至5节，每节时长1至2小时；（e）每月进行；（f）由医生或医疗专业人员授课；（g）由政府全额资助或以可承受的费用提供。
这些研究结果是未来设计和开发慢性病自我管理项目的前提步骤，该项目要针对患者的需求和偏好。
