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癌症患者自助管理:对女性抗癌自助协会在线论坛的分析。

Self-help management of patients undergoing chemotherapy: analysis of the online forum of the women's self-help association against cancer.

机构信息

Klinik Für Innere Medizin II, Universitätsklinikum Jena, Am Klinikum 1, 07747, Jena, Germany.

出版信息

Breast Cancer. 2023 Nov;30(6):926-932. doi: 10.1007/s12282-023-01481-2. Epub 2023 Jul 7.

Abstract

PURPOSE

The aim of this study was to examine threads on chemotherapy in the largest German self-help forum regarding content and emotions.

METHODS

All threads on the subject of chemotherapy that were published by February 6th, 2022 were included in the category "drug therapy". A total of 50 threads were analyzed. A quantitative analysis was carried out with regard to content, emotions, number of replies, number of hits, duration of the conversation, duration of access in days, number density of replies, and hits per day.

RESULTS

16 threads are about side effects and in 18 threads, the emotion is fear. Threads in which the emotion fear was expressed have the highest number of replies at 3367. Shared therapy successes are posted with pleasure and achieved a higher mean value for the duration of conversation with 1374.25 days.

CONCLUSION

An online self-help forum is a very important source of psychosocial support for patients undergoing chemotherapy.

摘要

目的

本研究旨在探讨德国最大的自助论坛中关于化疗的帖子的内容和情绪。

方法

将 2022 年 2 月 6 日前发布的关于化疗主题的所有帖子都归入“药物治疗”类别。共分析了 50 个帖子。对内容、情绪、回复数量、点击量、对话持续时间、访问天数、回复密度和每天点击量进行了定量分析。

结果

16 个帖子是关于副作用的,18 个帖子表达了恐惧的情绪。表达恐惧情绪的帖子回复数量最多,为 3367 条。分享治疗成功的帖子是愉快发布的,对话持续时间的平均值较高,为 1374.25 天。

结论

在线自助论坛是接受化疗的患者获得社会心理支持的一个非常重要的来源。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c2fc/10587254/341720559007/12282_2023_1481_Fig1_HTML.jpg

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