Puckett Cassidy, Wong Jenise C, Talbot Sloan, Min Hyojin Jennifer, Chokr Nora
Emory University, Department of Sociology, 1555 Tarbutton Hall, Room 225, Atlanta, GA, 30322, USA.
University of California San Francisco, Division of Endocrinology, UCSF Benioff Children's Hospital, USA.
SSM Qual Res Health. 2023 Jun;3. doi: 10.1016/j.ssmqr.2022.100215. Epub 2022 Dec 22.
As the prevalence of pediatric diabetes grows and new technologies to manage diabetes emerge, there is increasing concern about consistency in health management across institutional settings, particularly in schools. While much is known about barriers at school, there are still gaps in understanding the institutional dynamics that shape health management in this setting. Using focus groups with 19 youth with type 1 diabetes (T1D) and applying institutional role theory, we find healthcare providers' recommendations conflict with school rules and norms, making it difficult to enact both the "sick role" and the "student role." These conflicts elicit negative responses from teachers and peers and stigmatize youth with T1D in school. Caregiver involvement often heightens rather than ameliorates conflict and teachers do not intervene in effective ways. Ultimately, youth must manage conflicts and stigma. By reframing challenges in health management as institutional role conflict, this paper contributes to sociological research by highlighting the importance of institutional roles, especially beyond healthcare. More broadly, the study suggests health research and policy should investigate how to better align institutional roles-rather than relying on youth and their families-to support health management of chronic illnesses across institutional settings.
随着儿童糖尿病患病率的上升以及糖尿病管理新技术的出现,人们越来越关注不同机构环境下,尤其是学校中健康管理的一致性。虽然我们对学校中的障碍了解颇多,但在理解影响该环境下健康管理的机构动态方面仍存在差距。通过对19名1型糖尿病(T1D)青少年进行焦点小组访谈并应用机构角色理论,我们发现医疗保健提供者的建议与学校规则和规范相冲突,这使得“患病角色”和“学生角色”都难以践行。这些冲突引发了教师和同伴的负面反应,并在学校给患有T1D的青少年带来污名。照顾者的参与往往加剧而非缓解冲突,并且教师并未以有效的方式进行干预。最终,青少年必须应对冲突和污名。通过将健康管理中的挑战重新界定为机构角色冲突,本文强调了机构角色的重要性,尤其是在医疗保健之外的领域,从而为社会学研究做出了贡献。更广泛地说,该研究表明健康研究和政策应探讨如何更好地协调机构角色,而不是依赖青少年及其家庭,以支持跨机构环境下慢性病的健康管理。