Brew-Sam Nicola, Chhabra Madhur, Parkinson Anne, Hannan Kristal, Brown Ellen, Pedley Lachlan, Brown Karen, Wright Kristine, Pedley Elizabeth, Nolan Christopher J, Phillips Christine, Suominen Hanna, Tricoli Antonio, Desborough Jane
Department of Health Services Research and Policy, Research School of Population Health, College of Health and Medicine, Australian National University, Canberra, Australia.
Canberra Health Services, Canberra, Australia.
JMIR Diabetes. 2021 Feb 2;6(1):e20973. doi: 10.2196/20973.
In the last decade, diabetes management has begun to transition to technology-based care, with young people being the focus of many technological advances. Yet, detailed insights into the experiences of young people and their caregivers of using technology to manage type 1 diabetes mellitus are lacking.
The objective of our study was to describe the breadth of experiences and perspectives on diabetes technology use among children and adolescents with type 1 diabetes mellitus and their caregivers.
This systematic literature review used integrated thematic analysis to guide a narrative synthesis of the included studies. We analyzed the perspectives and experiences of young people with type 1 diabetes mellitus and their caregivers reported in qualitative studies, quantitative descriptive studies, and studies with a mixed methods design.
Seventeen articles met the inclusion criteria, and they included studies on insulin pump, glucose sensors, and remote monitoring systems. The following eight themes were derived from the analysis: (1) expectations of the technology prior to use, (2) perceived impact on sleep and overnight experiences, (3) experiences with alarms, (4) impact on independence and relationships, (5) perceived usage impact on blood glucose control, (6) device design and features, (7) financial cost, and (8) user satisfaction. While many advantages of using diabetes technology were reported, several challenges for its use were also reported, such as cost, the size and visibility of devices, and the intrusiveness of alarms, which drew attention to the fact that the user had type 1 diabetes mellitus. Continued use of diabetes technology was underpinned by its benefits outweighing its challenges, especially among younger people.
Diabetes technologies have improved the quality of life of many young people with type 1 diabetes mellitus and their caregivers. Future design needs to consider the impact of these technologies on relationships between young people and their caregivers, and the impact of device features and characteristics such as size, ease of use, and cost.
在过去十年中，糖尿病管理已开始向基于技术的护理转变，年轻人成为许多技术进步的重点关注对象。然而，对于年轻人及其护理人员使用技术管理1型糖尿病的经历，仍缺乏详细的见解。
我们研究的目的是描述1型糖尿病儿童和青少年及其护理人员在使用糖尿病技术方面的广泛经历和观点。
本系统文献综述采用综合主题分析来指导对纳入研究的叙述性综合。我们分析了定性研究、定量描述性研究以及混合方法设计研究中报告的1型糖尿病年轻人及其护理人员的观点和经历。
17篇文章符合纳入标准，包括关于胰岛素泵、葡萄糖传感器和远程监测系统的研究。分析得出以下八个主题：（1）使用前对技术的期望；（2）对睡眠和夜间体验的感知影响；（3）警报体验；（4）对独立性和人际关系的影响；（5）对血糖控制的感知使用影响；（6）设备设计和功能；（7）财务成本；（8）用户满意度。虽然报告了使用糖尿病技术的许多优点，但也报告了其使用中的一些挑战，如成本、设备的尺寸和可见性以及警报的侵扰性，这些都让人注意到用户患有1型糖尿病这一事实。糖尿病技术的持续使用得益于其益处超过挑战，尤其是在年轻人中。
糖尿病技术改善了许多1型糖尿病年轻人及其护理人员的生活质量。未来的设计需要考虑这些技术对年轻人及其护理人员之间关系的影响，以及设备特征（如尺寸、易用性和成本）的影响。
