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基于网络的自我护理指导对活体肝供体症状体验和生活质量的影响：一项随机对照试验。

The effect of a web-based self-care instruction on symptom experience and quality of life in living liver donors: A randomized controlled trial.

作者信息

Weng Li-Chueh, Huang Hsiu-Li, Tsai Yu-Hsia, Tsai Hsiu-Hsin, Lee Wei-Chen, Shieh Wann-Yun

机构信息

School of Nursing, College of Medicine, Chang Gung University, Taoyuan, Taiwan.

Department of General Surgery, Liver Transplantation, Chang Gung Medical Foundation, Linkuo Medical Center, Taoyuan, Taiwan.

出版信息

Heliyon. 2023 Jun 15;9(6):e17333. doi: 10.1016/j.heliyon.2023.e17333. eCollection 2023 Jun.

DOI:10.1016/j.heliyon.2023.e17333
PMID:37484234
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10361383/
Abstract

OBJECTIVE

Living liver donors need help to manage symptom distress and improve their quality of life. This study aims to test the effectiveness of a web-based symptom self-care instruction on symptom experience and health-related quality of life of living liver donors.

METHODS

This study was a randomized controlled trial. Participants were recruited from January 2019 to August 2020. Participants in the experimental group had access to a web-based symptom self-care instruction, which included text and video. The control group received routine care. The primary outcomes were symptom distress and quality of life.

RESULTS

A total of 90 living liver donors recruited in this study were assigned randomly to the web group (n = 46) and control group (n = 44). The symptom distress was significantly negatively correlated with quality of life at each data collection time. There was an interaction effect with the participants in the web group experiencing more symptom distress at three months after surgery than the control group (B = 3.616, 95% CI: 7.163-3.990, p = 0.046). There was no significant effect on the quality of life.

CONCLUSION

Patients in the web-based self-care group had higher symptom distress than those in the control group three months after surgery, but there was no difference in quality of life. Future studies could add some interactive elements to the website and include a larger sample size.

REGISTRATION

This study was registered at the Chinese Clinical Trial Registry (ChiCTR1900020518).

摘要

目的

活体肝供者需要帮助来应对症状困扰并改善生活质量。本研究旨在测试基于网络的症状自我护理指导对活体肝供者症状体验和健康相关生活质量的有效性。

方法

本研究为随机对照试验。研究对象于2019年1月至2020年8月招募。实验组参与者可以使用包含文字和视频的基于网络的症状自我护理指导。对照组接受常规护理。主要结局指标为症状困扰和生活质量。

结果

本研究共招募了90名活体肝供者，随机分为网络组（n = 46）和对照组（n = 44）。在每次数据收集时，症状困扰与生活质量均呈显著负相关。存在交互效应，网络组参与者在术后三个月时比对照组经历更多的症状困扰（B = 3.616，95%CI：7.163 - 3.990，p = 0.046）。对生活质量无显著影响。

结论

基于网络的自我护理组患者在术后三个月时的症状困扰高于对照组，但生活质量无差异。未来研究可在网站上增加一些互动元素，并纳入更大的样本量。

注册情况

本研究在中国临床试验注册中心注册（ChiCTR1900020518）。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8aa1/10361383/929a696649d8/gr4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8aa1/10361383/d6eac4d4fe7a/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8aa1/10361383/a4e684275ab9/gr2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8aa1/10361383/1f493a574c1f/gr3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8aa1/10361383/929a696649d8/gr4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8aa1/10361383/d6eac4d4fe7a/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8aa1/10361383/a4e684275ab9/gr2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8aa1/10361383/1f493a574c1f/gr3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8aa1/10361383/929a696649d8/gr4.jpg

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