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阿尔茨海默病和相关痴呆症患者居住在养老院的生活质量的种族差异。

Racial Differences in Nursing Home Quality of Life Among Residents Living With Alzheimer's Disease and Related Dementias.

机构信息

Division of Health Policy and Management, School of Public Health, University of Minnesota, Minneapolis, MN, USA.

Division of Epidemiology and Community Health, School of Public Health, University of Minnesota, Minneapolis, MN, USA.

出版信息

J Aging Health. 2024 Jun;36(5-6):379-389. doi: 10.1177/08982643231191164. Epub 2023 Jul 26.

Abstract

ObjectivesAmong nursing home (NH) residents with Alzheimer's disease (AD) and AD-related dementias (AD/ADRD), racial/ethnic disparities in quality of care exist. However, little is known about quality of life (QoL). This study examines racial/ethnic differences in self-reported QoL among NH residents with AD/ADRD. Validated, in-person QoL surveys from 12,562 long-stay NH residents with AD/ADRD in Minnesota (2012-2015) were linked to Minimum Data Set assessments and facility characteristics. Hierarchical linear models assessed disparities in resident-reported mean QoL score (range, 0-100 points), adjusting for case-mix and facility factors. Compared to White residents, racially/ethnically minoritized residents reported significantly lower total mean QoL scores (75.53 points vs. 80.34 points, < .001). After adjustment for resident- and facility-level characteristics, significant racial/ethnic differences remained, with large disparities in food enjoyment, attention from staff, and engagement domains. Policy changes and practice guidelines are needed to address racial/ethnic disparities in QoL of NH residents with AD/ADRD.

摘要

目的

在患有阿尔茨海默病(AD)和与 AD 相关的痴呆症(AD/ADRD)的养老院(NH)居民中,存在护理质量的种族/民族差异。然而,关于生活质量(QoL)的了解甚少。本研究探讨了 AD/ADRD 养老院居民自我报告的 QoL 方面的种族/民族差异。

从明尼苏达州的 12562 名患有 AD/ADRD 的长期 NH 居民(2012-2015 年)中获取了经过验证的面对面 QoL 调查,并将其与最低数据组评估和设施特征相关联。分层线性模型评估了居民报告的平均 QoL 得分(范围为 0-100 分)方面的差异,调整了病例组合和设施因素。

与白人居民相比,少数民族/族裔居民报告的总体平均 QoL 得分明显较低(75.53 分对 80.34 分, <.001)。在调整了居民和设施水平特征后,仍然存在显著的种族/民族差异,在食物享受、员工关注和参与度方面存在较大差距。

需要政策变革和实践指南来解决 AD/ADRD 养老院居民 QoL 的种族/民族差异。

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Innov Aging. 2022 May 23;6(4):igac037. doi: 10.1093/geroni/igac037. eCollection 2022.
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Disproportionate increases in schizophrenia diagnoses among Black nursing home residents with ADRD.
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