Department of Philosophy, Sociology, Education and Applied Psychology (FISPPA), University of Padova, 35131 Padua, Italy.
Sagol Creative Arts Therapies Research Center, Haifa 31905, Israel.
Int J Environ Res Public Health. 2023 Jul 8;20(14):6327. doi: 10.3390/ijerph20146327.
Epidemiological studies show that new cases of young oncology patients are increasing by 400,000 every year. Psychological literature has shown that receiving an oncological diagnosis can cause significant psychological stress and discomfort. However, the experiences of young patients and their caregivers as they confront this challenge are not yet fully understood. This paper adopts a qualitative methodological approach to explore how young patients with an oncological diagnosis and their parents make sense of the experiential challenges they face. Thus, the research realized 18 semi-structured interviews, 11 of which were with pediatric and adolescent oncology patients, and 7 of which were with 6 mothers and 1 father. The qualitative thematic analysis revealed that the oncological diagnosis triggers different emotions taking the scene in the attempt to cope with the threats of meaning that the diagnosis poses. However, such intense experience promotes transformative feelings in parents and young patients, leading to important personal growth. Lastly, this article discusses the need to improve palliative psychological care competences in pediatric oncology. By providing comprehensive psychological care to young oncology patients and their families, healthcare providers can mitigate the psychological stress and pain associated with the diagnosis and treatment of cancer.
流行病学研究表明,每年新增的年轻肿瘤患者数量增加了 40 万。心理学文献表明,接受肿瘤诊断会导致显著的心理压力和不适。然而,年轻患者及其照顾者在面对这一挑战时的经历尚未被充分了解。本文采用定性方法学方法来探索年轻肿瘤患者及其父母如何理解他们所面临的体验挑战。因此,研究进行了 18 次半结构化访谈,其中 11 次是儿科和青少年肿瘤患者,7 次是 6 位母亲和 1 位父亲。定性主题分析显示,肿瘤诊断引发了不同的情绪,试图应对诊断带来的意义威胁。然而,这种强烈的体验促使父母和年轻患者产生了转变性的感受,从而带来了重要的个人成长。最后,本文讨论了需要提高儿科肿瘤学的姑息性心理护理能力。通过为年轻肿瘤患者及其家庭提供全面的心理护理,医疗保健提供者可以减轻与癌症诊断和治疗相关的心理压力和痛苦。