TIRR Memorial Hermann, Houston, TX 77030, USA.
Department of Physical Medicine and Rehabilitation, University of Texas Health Science Center, Houston, TX 77054, USA.
Int J Environ Res Public Health. 2023 Jul 18;20(14):6387. doi: 10.3390/ijerph20146387.
This study represents the first known research addressing the impact of the COVID-19 pandemic on women with spinal cord injury (SCI) in the United States. Women in this population face unique barriers that put them at elevated risk for compromised quality of life, risk that was magnified by physical and social restrictions imposed during the pandemic. This qualitative study examined the perceptions of women with SCI and the effect of the pandemic on their lives. The predominantly White and relatively well-educated sample of 105 women with traumatic SCI was diverse in age, injury characteristics, and geographic representation. Recruited across the USA, participants in an online psychological health intervention trial were asked to respond to the item, "Please tell us how COVID-19 has affected you and your life", administered May-October, 2020. An overall sentiment rating of impact was coded as well as the impact of COVID-19 on eight individual themes: Physical Health, Mental Health, Social Health, Activities of Daily Living, Exercise, Work, Activities Outside the Home, and Activities at Home. Sentiment responses were rated as positive, negative, a mixture of positive and negative impacts, or neutral impact. Participants described the overall impact of COVID-19 as negative (54%), positive (10%), mixed (21%) or neutral (15%). Sentiment ratings to individual themes were also described. Our findings highlight the importance of providing access to disability-sensitive and affordable support, resources, and interventions for women with SCI, especially during a public health crisis.
本研究代表了首次已知的针对美国脊髓损伤（SCI）女性的 COVID-19 大流行影响的研究。该人群中的女性面临着独特的障碍，使她们面临生活质量受损的风险增加，而大流行期间实施的身体和社会限制使这种风险进一步加剧。这项定性研究探讨了 SCI 女性的看法以及大流行对她们生活的影响。105 名创伤性 SCI 女性的参与者主要是白人且受过相对良好的教育，其年龄、受伤特征和地域代表性各不相同。这些参与者是在美国各地招募的，他们参加了一项在线心理健康干预试验，被要求回答“请告诉我们 COVID-19 对您和您的生活有何影响”这一问题，该问题于 2020 年 5 月至 10 月进行。对整体影响的情绪评分以及 COVID-19 对八个主题的影响进行了编码：身体健康、心理健康、社会健康、日常生活活动、锻炼、工作、家庭以外的活动和家庭活动。情绪反应被评为积极、消极、积极和消极混合或中性影响。参与者将 COVID-19 的总体影响描述为负面（54%）、正面（10%）、混合（21%）或中性（15%）。对各个主题的情绪评分也进行了描述。我们的研究结果强调了为 SCI 女性提供残疾敏感且负担得起的支持、资源和干预措施的重要性，尤其是在公共卫生危机期间。
