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反思室:从避谈死亡到直面死亡

The Reflection Room: Moving from Death-Avoiding to Death-Discussing.

作者信息

Carter Celina, Giosa Justine, Rizzi Katherine, Oikonen Karen, Stephenson Barry, Holyoke Paul

机构信息

SE Research Centre, Markham, ON, Canada.

School of Public Health Sciences, The University of Waterloo, Waterloo, ON, Canada.

出版信息

Omega (Westport). 2023 Jul 29;92(2):302228231192163. doi: 10.1177/00302228231192163.

Abstract

We developed, implemented, and evaluated a participatory arts-based storytelling initiative called the Reflection Room project. Our aim was to investigate if visiting a Reflection Room, (1) creates opportunities for disclosing emotions and processing thoughts, (2) increases comfort discussing dying and death, and (3) supports advance care planning (ACP), conversations. In the pilot phase of the Reflection Room project, a Reflection Room was installed in 25 sites across Canada from 2016-2017. Data collection included reflection cards ( = 463), and surveys completed by visitors upon exiting a room ( = 271) and 3 months later ( = 50). Analysis involved theoretically driven coding, inductive content analysis, and descriptive statistics. We found reflections contained both emotional disclosures and reflective processing. Survey data indicated visiting a Reflection Room increased comfort in thinking and talking about dying and death as well as the likelihood of engaging in ACP. In the future, we will explore the extent to which the project fosters social connections and well-being.

摘要

我们开发、实施并评估了一项名为“反思室”项目的基于参与性艺术的故事讲述倡议。我们的目的是调查参观反思室是否(1)创造了披露情感和处理思想的机会,(2)增加了讨论死亡和临终的舒适度,以及(3)支持预先护理计划(ACP)对话。在反思室项目的试点阶段,2016年至2017年期间在加拿大各地的25个地点安装了反思室。数据收集包括反思卡片(n = 463),以及访客在离开房间时(n = 271)和3个月后(n = 50)完成的调查问卷。分析包括理论驱动编码、归纳内容分析和描述性统计。我们发现反思内容既包含情感披露也包含反思性处理。调查数据表明,参观反思室增加了思考和谈论死亡和临终的舒适度以及参与预先护理计划的可能性。未来,我们将探讨该项目在促进社会联系和福祉方面的程度。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a569/12508497/36ac6508bd94/10.1177_00302228231192163-fig1.jpg

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