Krawczyk Marian, Clare Emma, Collins Erin, Farr Sarah, Johnson Elizabeth, Mallmes Jennifer, Mallon Annetta, Oberle Kelly, Rigal Jennifer
College of Social Sciences, University of Glasgow, Rutherford/McCowan Building, Crichton University Campus, Dumfries, Scotland DG1 4ZL, UK.
University of Derby, Derby, UK.
Palliat Care Soc Pract. 2023 Jul 25;17:26323524231186826. doi: 10.1177/26323524231186826. eCollection 2023.
This review article summarizes the findings from the first virtual International End-of-Life Doula Symposium, held over 3 days on 25-27 April 2022. More than 40 people attended from seven countries, predominantly from Australia, Canada, the United States and the United Kingdom, and they were primarily experienced practitioners. In this article, we focus on participants' topics of conversations and experiences that were relevant across international boundaries, organized through the symposium themes of developments, disruptions, dilemmas and directions. All authors took de-identified handwritten notes across the 3 days of discussion, as well as reflexive notes about our own thoughts and perspectives on the topics discussed. We then collated our notes and abductively focussed our analysis on topics that generated significant conversation and/or came up repeatedly within the overall symposium themes, as well as trying to capture any unexpected issues and perspectives. We identify and summarize a wide range of interests and concerns within the development of the end-of-life doula (EOLD) role. We provide a model for integration pathways within existing health care systems, as well as an innovative conceptual framework synthesizing key intersecting developmental issues that are relevant across regional and national boundaries. The symposium was the first opportunity for EOLDs to collectively discuss their work and interests within an international context. Our findings indicate that there are fundamentally similar developmental issues across countries, along with some variations. As the first international event of its kind, our 'state of the field' summary review of the symposium holds significant insights relevant to both national and international contexts, and to a diversity of stakeholders interested in the development of this new care role and emerging transnational movement.
这篇综述文章总结了首届虚拟国际临终关怀陪伴者研讨会的成果,该研讨会于2022年4月25日至27日举行为期三天。来自七个国家的40多人参加了会议,主要来自澳大利亚、加拿大、美国和英国,他们大多是经验丰富的从业者。在本文中,我们聚焦于参与者跨越国界相关的对话主题和经历,这些主题和经历是按照研讨会的发展、干扰、困境和方向这几个主题来组织的。在为期三天的讨论中,所有作者都做了去识别化的手写笔记,以及关于我们自己对所讨论主题的想法和观点的反思笔记。然后,我们整理了笔记,并通过归纳法将分析重点放在那些引发大量讨论和/或在整个研讨会主题中反复出现的主题上,同时试图捕捉任何意外问题和观点。我们识别并总结了临终关怀陪伴者(EOLD)角色发展过程中的广泛兴趣和关注点。我们提供了一个在现有医疗保健系统内的整合途径模型,以及一个创新的概念框架,综合了跨越区域和国家边界的关键交叉发展问题。这次研讨会是EOLDs在国际背景下集体讨论他们的工作和兴趣的首次机会。我们的研究结果表明,各国在根本上存在相似的发展问题,也有一些差异。作为同类的首次国际活动,我们对该研讨会的“领域现状”总结回顾对国内和国际背景以及对这一新护理角色发展和新兴跨国运动感兴趣的各种利益相关者都具有重要的见解。