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儿童流感样疾病期间照顾者的生活质量:COVID-19大流行期间的一项横断面研究

Caregiver Quality of Life During Pediatric Influenza-Like Illness: A Cross-Sectional Study During the COVID-19 Pandemic.

作者信息

Overmann Kevin M, Porter Stephen C, Zhang Yin, Britto Maria T

机构信息

Division of Emergency Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.

Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, OH, USA.

出版信息

J Patient Exp. 2023 Jul 27;10:23743735231188840. doi: 10.1177/23743735231188840. eCollection 2023.

Abstract

The objective of this study was to quantify the quality of life (QoL) of caregivers with children with influenza-like illnesses (ILI) and to identify factors associated with worse QoL. This was a cross-sectional cohort study of caregivers in a pediatric emergency department with previously healthy young children with ILI. The primary outcome was caregiver QoL. Additional measures included health literacy, social support, and caregiver health status. Two hundred and eighty-one caregivers completed the study. And 41% reported overall QoL was worse during their child's illness. The median QoL score was 3.8 [3.1, 4.6] in a 7-point scale. Illness duration was associated with worse overall QoL score (0.128 worse for each additional day of illness). The median emotions domain score was 2.5 [1.5, 4.0], the worst of any domain. Caregivers who perceived worse illness severity had lower emotions domain scores (2.61 vs 6.00,  = .0269). Caregivers with adequate literacy had lower mean QoL scores (3.08 vs 4.44,  < .0001). Childhood illnesses worsen caregiver QoL. Factors associated with worse QoL were perception of illness severity and duration. Addressing caregiver QoL could mitigate the impact of childhood acute illnesses on caregiver wellbeing.

摘要

本研究的目的是量化患流感样疾病(ILI)儿童的照料者的生活质量(QoL),并确定与较差生活质量相关的因素。这是一项针对儿科急诊科照料者的横断面队列研究,这些照料者的幼儿此前健康但患有ILI。主要结局是照料者的生活质量。其他测量指标包括健康素养、社会支持和照料者健康状况。281名照料者完成了该研究。41%的人报告称,在孩子患病期间,他们的总体生活质量较差。在7分制中,生活质量得分的中位数为3.8[3.1, 4.6]。疾病持续时间与总体生活质量得分较差相关(疾病每增加一天,得分恶化0.128)。情绪领域得分的中位数为2.5[1.5, 4.0],是所有领域中最差的。认为疾病严重程度更差的照料者情绪领域得分更低(2.61对6.00,P = 0.0269)。具备足够素养的照料者平均生活质量得分更低(3.08对4.44,P < 0.0001)。儿童疾病会使照料者的生活质量恶化。与较差生活质量相关的因素是对疾病严重程度和持续时间的认知。关注照料者的生活质量可以减轻儿童急性疾病对照料者幸福感的影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/59bd/10388629/e18954439bfd/10.1177_23743735231188840-fig1.jpg

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