Department of Medicine, Montefiore Medical Center, Bronx, NY, USA.
Department of Family and Social Medicine, Albert Einstein College of Medicine, Bronx, NY, USA.
Am J Hosp Palliat Care. 2024 May;41(5):486-491. doi: 10.1177/10499091231190354. Epub 2023 Aug 3.
Advance Care Planning (ACP) has not reliably improved care for patients at end-of-life. Serious Illness Conversations when patients are in the late stages of chronic illness might be more effective to address patients' goals. The Serious Illness Conversation (SIC) Guide has been helpful but was not developed for use in safety-net settings serving racial and ethnic minority populations.
Physicians were recruited to complete a needs assessment survey prior to training in the use of the SIC Guide.
Of the 44 physician participants, most were female (82%) and white, non-Hispanic (62%). Less than half of respondents rated themselves as skilled or very skilled in basic serious illness communication related tasks such as setting up goals of care discussions (44%), assessing informational preferences (42%), sharing prognosis (38%), exploring goals for future care (49%) and managing family dynamics (44%). Respondents reported lower skill levels in conducting goals of care conversations via telehealth and establishing trust in racially discordant provider/patient pairs.
Most participants expressed the need for further training in critical end-of-life communications skills, including help with encounters with racial and/or language discordance. This may help to explain the failure of ACP discussions to reliably result in appropriate end-of-life care.
预先医疗指示(ACP)并未可靠地改善末期病患的医疗照护。当患者处于慢性疾病晚期时,进行严重疾病对话可能更有助于解决患者的目标。严重疾病对话(SIC)指南很有帮助,但它不是为服务于少数族裔人群的安全网环境而开发的。
招募医生在接受 SIC 指南使用培训之前完成需求评估调查。
在 44 名参与的医生中,大多数是女性(82%)和白人非西班牙裔(62%)。不到一半的受访者认为自己在基本严重疾病沟通相关任务方面具有熟练或非常熟练的技能,例如开展医疗照护目标讨论(44%)、评估信息偏好(42%)、分享预后(38%)、探讨未来医疗照护目标(49%)和管理家庭动态(44%)。受访者报告在通过远程医疗进行医疗照护目标对话和在种族不同的医患关系中建立信任方面的技能水平较低。
大多数参与者表示需要进一步培训关键的临终沟通技能,包括处理种族和/或语言差异的问题。这也许可以解释为什么 ACP 讨论未能可靠地导致适当的临终关怀。