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关于重病护理目标的沟通:最佳实践的综述和综合。

Communication about serious illness care goals: a review and synthesis of best practices.

机构信息

Division of Adult Palliative Care, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, Massachusetts2Ariadne Labs, Brigham and Women's Hospital & Harvard School of Public Health, Boston, Massachusetts3Division of.

Division of Adult Palliative Care, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, Massachusetts2Ariadne Labs, Brigham and Women's Hospital & Harvard School of Public Health, Boston, Massachusetts4Center for.

出版信息

JAMA Intern Med. 2014 Dec;174(12):1994-2003. doi: 10.1001/jamainternmed.2014.5271.

Abstract

An understanding of patients' care goals in the context of a serious illness is an essential element of high-quality care, allowing clinicians to align the care provided with what is most important to the patient. Early discussions about goals of care are associated with better quality of life, reduced use of nonbeneficial medical care near death, enhanced goal-consistent care, positive family outcomes, and reduced costs. Existing evidence does not support the commonly held belief that communication about end-of-life issues increases patient distress. However, conversations about care goals are often conducted by physicians who do not know the patient, do not routinely address patients' nonmedical goals, and often fail to provide patients with sufficient information about prognosis to allow appropriate decisions; in addition, they tend to occur so late in the patient's illness that their impact on care processes is reduced. This article (1) reviews the evidence and describes best practices in conversations about serious illness care goals and (2) offers practical advice for clinicians and health care systems about developing a systematic approach to quality and timing of such communication to assure that each patient has a personalized serious illness care plan. Best practices in discussing goals of care include the following: sharing prognostic information, eliciting decision-making preferences, understanding fears and goals, exploring views on trade-offs and impaired function, and wishes for family involvement. Several interventions hold promise in systematizing conversations with patients about serious illness care goals: better education of physicians; systems to identify and trigger early discussions for appropriate patients; patient and family education; structured formats to guide discussions; dedicated, structured sections in the electronic health record for recording information; and continuous measurement. We conclude that communication about serious illness care goals is an intervention that should be systematically integrated into our clinical care structures and processes.

摘要

了解患者在重病背景下的护理目标是高质量护理的一个基本要素,使临床医生能够使提供的护理与患者最重要的内容保持一致。早期讨论护理目标与提高生活质量、减少临终前无益的医疗保健使用、增强与目标一致的护理、积极的家庭结局以及降低成本有关。现有证据并不支持人们普遍认为的关于生命末期问题的沟通会增加患者痛苦的观点。然而,关于护理目标的对话通常是由不了解患者的医生进行的,他们通常不会解决患者的非医疗目标,并且经常没有向患者提供足够的预后信息,以使他们能够做出适当的决策;此外,这些对话往往发生在患者病情晚期,因此对护理过程的影响降低。本文(1)回顾了证据,并描述了关于严重疾病护理目标的对话的最佳实践,(2)为临床医生和医疗保健系统提供了关于制定这种沟通的质量和时间的系统方法的实用建议,以确保每个患者都有个性化的严重疾病护理计划。讨论护理目标的最佳实践包括以下内容:分享预后信息、引出决策偏好、理解恐惧和目标、探讨权衡和功能受损的观点以及对家庭参与的愿望。有几种干预措施有望使与患者进行关于严重疾病护理目标的对话系统化:更好地教育医生;识别和触发适当患者早期讨论的系统;患者和家庭教育;指导讨论的结构化格式;电子健康记录中用于记录信息的专用、结构化部分;以及持续的测量。我们的结论是,关于严重疾病护理目标的沟通是一种干预措施,应该系统地整合到我们的临床护理结构和流程中。

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