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盲目起源:我们是否应该就药物和疗法的来源向家长提供建议?

Uninformed Origins: Should We Be Advising Parents on the Source of Medicines and Therapies?

机构信息

Baylor College of Medicine, 1 Baylor Plaza, Houston, TX, 77030, USA.

Texas Childrens Hospital, Houston, TX, USA.

出版信息

Health Care Anal. 2023 Dec;31(3-4):186-195. doi: 10.1007/s10728-023-00458-8. Epub 2023 Aug 3.

DOI:10.1007/s10728-023-00458-8
PMID:37535146
Abstract

Respecting patient autonomy through the process of soliciting informed consent is a cornerstone of clinical ethics. In pediatrics, until a child becomes an adult or legally emancipated, that ethical tenet takes the form of respect for parental decision-making authority. In instances of respecting religious beliefs, doing so is not always apparent and sometimes the challenge lies not only in the healthcare provider's familiarity of religious restrictions but also their knowledge of medical interventions themselves which might conflict with those restrictions. We examine a case of a newborn receiving animal-derived surfactant, a common scenario in neonatology, and present considerations for providers to weigh when confronting when such an intervention might conflict with parent's religious beliefs. We end with strategizing ways to address this issue as a medical community.

摘要

通过征求知情同意的过程尊重患者自主权是临床伦理学的基石。在儿科领域,直到儿童成年或合法获得解放之前,这一道德原则表现为尊重父母的决策权威。在尊重宗教信仰的情况下,情况并非总是如此明显,有时挑战不仅在于医疗保健提供者对宗教限制的熟悉程度,还在于他们对可能与这些限制冲突的医疗干预措施的了解。我们检查了一个新生儿接受动物源性表面活性剂的案例,这是新生儿学中的常见情况,并为提供者提出了在干预措施可能与父母的宗教信仰冲突时需要权衡的考虑因素。最后,我们制定了作为医疗界解决这个问题的策略。

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本文引用的文献

1
SurE for surfactant: response to letter.表面活性剂的SurE:对来信的回复
Arch Dis Child Fetal Neonatal Ed. 2023 Jan;108(1):91-92. doi: 10.1136/archdischild-2021-323394. Epub 2021 Nov 29.
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European Consensus Guidelines on the Management of Respiratory Distress Syndrome - 2019 Update.欧洲呼吸窘迫综合征管理共识指南-2019 更新版。
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Ethical considerations in the use of biopolymer sutures.生物聚合物缝线使用中的伦理考虑。
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Settling for second best: when should doctors agree to parental demands for suboptimal medical treatment?退而求其次:何时医生应该同意家长对次优医疗的要求?
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Executive Summary: Evaluation and Management of Children With Acute Mental Health or Behavioral Problems. Part II: Recognition of Clinically Challenging Mental Health Related Conditions Presenting With Medical or Uncertain Symptoms.执行摘要:急性心理健康或行为问题儿童的评估与管理。第二部分:识别伴有医学症状或不明症状的具有临床挑战性的心理健康相关病症。
Pediatrics. 2016 Sep;138(3). doi: 10.1542/peds.2016-1574. Epub 2016 Aug 22.
6
Parental preferences regarding administration of an animal-derived versus a synthetic medication to newborn infants.父母对于给新生儿使用动物源性药物还是合成药物的偏好。
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Teaching and assessing ethics in the newborn ICU.新生儿重症监护病房中的伦理教学与评估
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Relevant Information and Informed Consent in Research: In Defense of the Subjective Standard of Disclosure.研究中的相关信息与知情同意:为披露的主观标准辩护。
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Ethics and professionalism education during neonatal-perinatal fellowship training in the United States.美国新生儿-围产期专科培训期间的伦理与职业素养教育
J Perinatol. 2015 Oct;35(10):875-9. doi: 10.1038/jp.2015.70. Epub 2015 Jun 25.
10
Informed Consent Examined Within the Context of Culturally Congruent Care: An Interprofessional Perspective.在文化契合护理背景下审视知情同意:跨专业视角
J Transcult Nurs. 2016 Jul;27(4):342-8. doi: 10.1177/1043659615569537. Epub 2015 Feb 15.