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日本儿科癌症患者生育力保存设施广泛应用面临的挑战。

Challenges to Widespread Use of Fertility Preservation Facilities for Pediatric Cancer Patients in Japan.

作者信息

Maezawa Tadashi, Suzuki Nao, Takeuchi Hiroki, Nishioka Mikiko, Hidaka Moe, Manabe Atsushi, Koga Yuhki, Kawaguchi Hiroshi, Sasahara Yoji, Tachibana Masahito, Iwamoto Shotaro, Horie Akihito, Hiramatsu Hidefumi, Kato Motohiro, Harada Miyuki, Yuza Yuki, Hirayama Masahiro, Takita Junko, Ikeda Tomoaki, Matsumoto Kimikazu

机构信息

Department of Obstetrics and Gynecology, Graduate School of Medicine, Mie University, Tsu, Japan.

Department of Obstetrics and Gynecology, St. Marianna University School of Medicine, Kanagawa, Japan.

出版信息

J Adolesc Young Adult Oncol. 2024 Feb;13(1):197-202. doi: 10.1089/jayao.2023.0059. Epub 2023 Aug 3.

Abstract

Although fertility preservation for pediatric cancer patients is becoming more widespread in Japan, some facilities do not provide sufficient information regarding fertility. This study aimed to elucidate the problems pertaining to the lack of information about fertility among patients. Based on a 2020 survey, seminars addressing fertility preservation were held from the Designated Pediatric Cancer Care Hospitals in each of the seven blocks in Japan to their partner hospital (pediatric cancer hospitals). The seminar consisted of lectures and group discussions, and a questionnaire was also administered after each seminar. In the group discussions, a lack of explanations to patients and explanatory materials for children were cited as issues by many facilities. The survey results revealed a lack of material explaining fertility preservation and a lack of knowledge among health care providers. There were also many requests to use the patient explanation videos presented at the seminar. The results indicate that further education for health care providers by seminar and other sources and enhancement of explanatory materials are important for fertility preservation in pediatric cancer hospitals in Japan.

摘要

尽管在日本,为儿科癌症患者保留生育能力的做法越来越普遍,但一些机构并未提供足够的有关生育能力的信息。本研究旨在阐明患者中存在的生育能力信息缺失问题。基于2020年的一项调查,从日本七个区域的指定儿科癌症护理医院到其合作医院(儿科癌症医院)举办了关于生育能力保留的研讨会。该研讨会包括讲座和小组讨论,每次研讨会后还进行了问卷调查。在小组讨论中,许多机构提到了对患者缺乏解释以及针对儿童的解释材料不足的问题。调查结果显示,缺乏关于生育能力保留的材料以及医疗服务提供者知识不足。还有许多人要求使用研讨会上展示的患者解释视频。结果表明,通过研讨会及其他渠道对医疗服务提供者进行进一步教育以及加强解释材料对于日本儿科癌症医院的生育能力保留非常重要。

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