Wang Xiaoli, Liu Mengqi, Li Jing, Wang Zhiwei, Liang Qian, Yan Zeping, Wang Jiurui, Luan Xiaorong
School of Nursing and Rehabilitation, Shandong University, Jinan, Shandong, China.
Cardiovascular Medicine, Qilu Hospital of Shandong University, Jinan, Shandong, China.
Res Nurs Health. 2023 Oct;46(5):546-557. doi: 10.1002/nur.22333. Epub 2023 Aug 3.
A poor quality of life (QoL) in patients with pulmonary hypertension (PH) is often associated with emotional disturbances and the ability to cope. Little is known, however, about the intrinsic links among the QoL, fear of disease progression (FoP), and coping styles in patients with PH. The purpose of this study was to elucidate the relationships among QoL, FoP, and coping styles in patients with PH. We conducted a cross-sectional survey of 247 patients from a tertiary hospital in Jinan, China and analyzed the relationships using network analysis. Participants completed the World Health Organization's Quality of Life Questionnaire, Fear of Disease Progression Questionnaire and Simple Coping Style Questionnaire during the survey period. The total QoL, positive coping, and negative coping scores were 46.55 ± 10.46, 31.75 ± 6.85, and 18.75 ± 4.66, respectively. The QoL psychological domain had the strongest centrality, deserving more attention than other domains. The coping styles were bridge nodes that connected the whole network, where negative coping and social family FoP, and positive coping and both social and psychological QoL had the strongest positive correlations. There were no significant sex-based or age-based differences in the networks. To improve QoL and psychological well-being in people with PH, healthcare professionals must focus on issues beyond the patient's physical health. Specifically, they should focus on positive coping styles, while developing interventions to promote positive coping and reduce negative coping styles.
肺动脉高压（PH）患者的生活质量（QoL）较差往往与情绪障碍和应对能力有关。然而，关于PH患者的生活质量、疾病进展恐惧（FoP）和应对方式之间的内在联系，人们知之甚少。本研究的目的是阐明PH患者的生活质量、疾病进展恐惧和应对方式之间的关系。我们对中国济南一家三级医院的247名患者进行了横断面调查，并使用网络分析来分析这些关系。在调查期间，参与者完成了世界卫生组织的生活质量问卷、疾病进展恐惧问卷和简易应对方式问卷。生活质量总分、积极应对得分和消极应对得分分别为46.55±10.46、31.75±6.85和18.75±4.66。生活质量的心理领域具有最强的中心性，比其他领域更值得关注。应对方式是连接整个网络的桥梁节点，其中消极应对与社会家庭疾病进展恐惧，以及积极应对与社会和心理生活质量之间具有最强的正相关。在这些网络中，不存在基于性别的显著差异或基于年龄的显著差异。为了提高PH患者的生活质量和心理健康，医疗保健专业人员必须关注患者身体健康之外的问题。具体而言，他们应关注积极的应对方式，同时制定干预措施以促进积极应对并减少消极应对方式。
