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英国的预先医疗指示规划 - 来自英国四个国家的快照。

Advance Care Planning in the United Kingdom - A snapshot from the four UK nations.

机构信息

Gold Standards Framework Centre, London, UK.

Portsmouth Hospitals University NHS Trust, Hampshire, UK.

出版信息

Z Evid Fortbild Qual Gesundhwes. 2023 Aug;180:150-162. doi: 10.1016/j.zefq.2023.05.023. Epub 2023 Aug 3.

Abstract

The United Kingdom (UK) as a whole has a long-established decades-old history as an early adopter of the concepts of Advance Care Planning (ACP), with significant integration into mainstream national policy and widespread implementation. The ACP term itself, its processes, means, inclusions and implementations vary considerably within the UK and between its four nations, but the overall impression is of a strongly uniting consensus on the positive impact, value and vital importance of ACP in enabling better care for people in the final years of life, and at earlier life stages. Though there is always more work to do and more lessons to learn, those of us who have watched this world-wide movement grow over recent decades, find the overall direction of travel of commitment to mainstreaming ACP in the UK to be inspiring and encouraging, and gives us hope for the future. Across the UK, there is much shared history, policy, objectives, and regulation related to ACP, and at the same time, many variations in approach, tone, emphasis and detail within and between the four nations of the UK. The 2022 Office of National Statistics reports that the four nations of the UK have a combined population of 67 million (England 56.5 million, Scotland 5.5 million, Wales 3.1 million, Northern Ireland 1.9 million). All four nations are prioritising ACP as part of national policy, aiming to deliver more personalised care, particularly but not exclusively for those nearing the end of life, with a wide variety of best practice examples. Here we describe some common areas and variations across the UK history, policy and legal perspectives, some examples of best practice, resources, and exciting developments across all four nations which, although not exhaustive and within the limitations of our brief, reflect the flavour of our shared commitment. We are most grateful to all the contributing authors.

摘要

英国(UK)作为一个整体,在采用预先医疗照护计划(ACP)的概念方面有着悠久的历史,可以追溯到几十年前,其已被广泛纳入主流国家政策并得到实施。ACP 这一术语本身,以及其过程、方法、包含内容和实施情况,在英国国内以及其四个国家之间存在很大差异,但总体印象是,人们强烈认同 ACP 在生命最后几年和更早阶段为人们提供更好的护理方面的积极影响、价值和重要性。尽管还有更多的工作要做,还有更多的经验要吸取,但我们这些见证了这一全球性运动在过去几十年中发展的人,发现英国将 ACP 纳入主流的总体发展方向令人鼓舞和振奋,并为我们的未来带来希望。在英国,与 ACP 相关的历史、政策、目标和法规有很多共同点,同时,在英国的四个国家内部和之间,在方法、语气、重点和细节上也存在许多差异。2022 年,英国国家统计局的报告显示,英国的四个国家共有 6700 万人口(英格兰 5650 万,苏格兰 550 万,威尔士 310 万,北爱尔兰 190 万)。这四个国家都将 ACP 作为国家政策的一部分,旨在提供更个性化的护理,特别是但不限于那些生命即将结束的人,同时还提供了各种各样的最佳实践范例。在这里,我们描述了英国历史、政策和法律观点中的一些共同领域和差异、一些最佳实践范例、资源和所有四个国家的令人兴奋的发展情况,尽管这些内容并不详尽,而且受到我们简介的限制,但反映了我们共同承诺的精神。我们非常感谢所有参与的作者。

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