“我心想‘为什么是现在？’”——奥地利一项关于子宫内膜异位症和疼痛的定性研究。
"I think to myself 'why now?'" - a qualitative study about endometriosis and pain in Austria.
机构信息
Department of Obstetrics and Gynecology, Medical University of Vienna, Waehringer Gürtel 18-20, Vienna, 1090, Austria.
Krankenhaus der Barmherzigen Schwestern, Seilerstätte 4, Linz, 4010, Austria.
出版信息
BMC Womens Health. 2023 Aug 4;23(1):409. doi: 10.1186/s12905-023-02576-w.
BACKGROUND
Endometriosis is a chronic, benign, and oestrogen-dependent condition and about 10-15% of all women of reproductive age are affected by endometriosis worldwide. It is not curable and pain is one of the most common symptoms of endometriosis and leads to low quality of life in affected women. To our knowledge, in German-speaking countries, no studies with qualitative methods approaches are available concerning women who suffer from pain caused by endometriosis and possible associated coping strategies. Our study aims to familiarise ourselves with the individual pain experience of selected women who suffer from endometriosis in Austria and their coping strategies.
METHODS
A qualitative study design was based on problem-centred interviews for data collection and qualitative content analysis for data analysis. The research participants were women aged between 18 and 55 diagnosed with endometriosis and living in Austria. The interview period was from 27 February to 26 March 2019 and interviews lasted between 50 and 75 min.
RESULTS
Eight categories were formulated, of which category 3 (thoughts and feelings regarding endometriosis and pain - 'why?'), category 5 (effects and changes caused by endometriosis and pain - 'quality of life'), category 7 (taboos - 'don`t talk about it'), and category 8 (talking about it - 'contact with others in the same position') were relevant for this article. The remaining four categories [1-4] have already been published elsewhere.
CONCLUSION
Our data show that the social environment plays a fundamental role in coping strategies concerning pain caused by endometriosis. Women in our study reported that exchange with peers offers support. This opens a door for information events, patient organizations like support groups, and the inclusion of these in the supporting system. Involving occupational medicine and workplace health promotion departments in companies should be further goals to support affected women.
背景
子宫内膜异位症是一种慢性、良性且依赖于雌激素的疾病，全球约有 10-15%的育龄期女性受到子宫内膜异位症的影响。该疾病无法治愈，疼痛是子宫内膜异位症最常见的症状之一，会导致受影响女性的生活质量下降。据我们所知，在德语国家，没有关于因子宫内膜异位症引起疼痛的女性及其可能的应对策略的定性方法研究。我们的研究旨在了解奥地利患有子宫内膜异位症的女性个体疼痛体验及其应对策略。
方法
本研究采用基于问题的访谈收集数据，并采用定性内容分析进行数据分析。研究对象为年龄在 18 至 55 岁之间、被诊断为子宫内膜异位症且居住在奥地利的女性。访谈时间为 2019 年 2 月 27 日至 3 月 26 日，访谈时间在 50 至 75 分钟之间。
结果
本研究共形成了 8 个类别，其中第 3 类（关于子宫内膜异位症和疼痛的想法和感受-“为什么？”）、第 5 类（子宫内膜异位症和疼痛引起的影响和变化-“生活质量”）、第 7 类（禁忌-“不要谈论它”）和第 8 类（谈论它-“与处境相同的人联系”）与本文相关。其余 4 个类别[1-4]已在其他地方发表。
结论
我们的数据表明，社会环境在应对子宫内膜异位症引起的疼痛的应对策略中起着至关重要的作用。本研究中的女性报告说，与同龄人交流可以提供支持。这为信息活动、患者组织（如支持小组）以及将这些组织纳入支持系统打开了大门。进一步的目标是让职业医学和工作场所健康促进部门参与到公司中，为受影响的女性提供支持。
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