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为痴呆症患者争取赔偿:承认、问责、改变,现在就行动!

Reparations for people living with dementia: Recognition, accountability, change, now!

机构信息

Faculty of Law, University of Technology Sydney, Broadway, NSW, Australia.

School of Justice and Society, University of South Australia, Adelaide, Australia.

出版信息

Dementia (London). 2023 Nov;22(8):1738-1756. doi: 10.1177/14713012231190832. Epub 2023 Aug 5.

DOI:10.1177/14713012231190832
PMID:37542425
Abstract

There is a significant and longstanding problem of harm to people living with dementia in long term care institutions ('LTC institutions', referred to by others as 'care homes', 'nursing homes', 'long term care', 'residential aged care facilities'), along with a failure to redress the harm or hold people accountable for this harm. This article reports on an Australian project that found reparations must be a response to harm to people living with dementia in residential aged care. Using a disability human rights methodology, focus groups were conducted with people living with dementia, care partners and family members, advocates and lawyers to explore perspectives on why and how to redress harm to people living with dementia in Australian LTC institutions. Researchers found four key themes provide the basis for the necessity and design of a reparative approach to redress - recognition, accountability, change, now. The article calls for further attention to reparations in dementia scholarship, with a particular focus on the role that can be played in the delivery of reparations by the LTC industry, dementia practitioners, and dementia scholars. Ultimately, this article provides a new understanding of responses to violence, abuse, neglect and other harms experienced by people living with dementia in LTC institutions, which centres justice, rights, and transformative change.

摘要

长期护理机构(其他人称为“养老院”、“护理院”、“长期护理”、“安老院”)中,患有痴呆症的人长期遭受严重伤害,而这种伤害却未得到纠正,相关人员也未被追究责任,这是一个长期存在且严重的问题。本文报道了一个澳大利亚项目,该项目发现赔偿必须是对安老院中患有痴呆症的人所受伤害的回应。研究人员采用残疾人人权方法,与患有痴呆症的人、护理人员和家庭成员、倡导者和律师进行焦点小组讨论,以探讨为何以及如何纠正澳大利亚长期护理机构中患有痴呆症的人的伤害。研究人员发现,四个关键主题为纠正伤害的赔偿措施的必要性和设计提供了依据——承认、问责、改变,现在。该文章呼吁痴呆症研究领域进一步关注赔偿问题,特别关注长期护理行业、痴呆症从业者和痴呆症学者在赔偿实施方面的作用。最终,本文为理解长期护理机构中患有痴呆症的人所遭受的暴力、虐待、忽视和其他伤害的应对措施提供了新的视角,其核心是正义、权利和变革。

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